SynthesisAlzheimer's & dementia : the journal of the Alzheimer's Association2025
Examining the lived experience of dementia with Lewy bodies through qualitative research: A systematic review.
Synthesis in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
4 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Examining the lived experience of dementia with Lewy bodies through qualitative research: A systematic review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Pooled it
- Cognition endpoints for Parkinson's disease: A roadmap for developing patient-focused assessment tools to accelerate drug development.Journal of Parkinson's disease · 2026Article
- Article
- Treatment priorities from the perspectives of people with dementia with Lewy bodies: a reflexive thematic analysis.Frontiers in dementia · 2026Article
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Authors and funding
4 authors.
Funding
Abstract
introductionDementia with Lewy bodies (DLB) is inadequately diagnosed and treated, which negatively influences patient outcomes.
methodsThis systematic review evaluated qualitative studies of lived experiences from DLB patient and caregiver perspectives to identify gaps and define future research directions.
resultsThe review included 27 studies. Most reported caregiver experiences (67%). Few focused solely on people with DLB. Three themes emerged: (1) symptoms and impacts; (2) caregivers' care challenges; and (3) needs and priorities for education, support, and research. Gaps in qualitative literature included small DLB sample sizes, inconsistent diagnostic criteria, variably reported characteristics, merged data across dementia types and stages, and under-representation of informants and diverse groups. DISCUSSION: This review provides the first qualitative evidence synthesis in DLB, highlighting profound impacts of DLB symptoms, but also gaps in understanding direct experiences. Additional qualitative work regarding the lived experience in DLB is needed to inform clinical management and therapeutic development. HIGHLIGHTS: Symptoms in dementia with Lewy bodies (DLB) vary greatly across individuals. Existing qualitative studies, though limited, show profound personal impact in DLB. Rigorous, systematic qualitative research in DLB symptom science is needed. Identifying what matters to people with DLB is essential for guiding treatment.
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