ArticleInternational journal of population data science2025
Transparency in the existence, use, and output of a mental health data resource: a descriptive paper from the National Institute for Health and Care Research (NIHR) Maudsley Biomedical Research Centre (BRC) Clinical Record Interactive Search (CRIS) Platform.
Article in International journal of population data science, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Transparency in the use of routinely collected mental health data for research is essential in maintaining public support and trust, as well as for supporting the sharing of information and data resources amongst the academic community. The National Institute for Health and Care Research (NIHR) Maudsley Biomedical Research Centre (BRC) Clinical Records Interactive Search (CRIS) enables a case register of deidentified mental health records from the South London and Maudsley NHS Foundation Trust (SLaM). CRIS supports mental health research across the lifespan from children and adolescents to older adults. Aim: This paper aims to describe the activities which contribute to ensuring that transparency is maintained throughout the journey of data in CRIS: from data collection, through application in research, to dissemination of findings. Approach: A communications plan is in place to support Patient and Public Involvement (PPI) and transparency initiatives for all CRIS stakeholders, including patients and carers, academic users, and the general public. Activities can be divided into three categories of transparency: existence, use, and output. Discussion: There are challenges to maintaining transparency, including ensuring that activities are varied enough to reach all stakeholders, including harder to reach groups, and presenting information in a way that is appropriate for the relevant audience. However, greater transparency has led to more opportunities for researchers to engage with patients and the CRIS model is widely accepted by patients. Conclusion: This paper set out to describe CRIS communications and transparency activities. We believe the material covered will be of interest to other providers of routinely collected data for research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.