Evidence map›Paper›PMID 40358905›Full record

ArticleJournal of cancer survivorship : research and practice2025

Support needs of young people caring for their parents with cancer.

Janet Njelesani, Lindsey Kaufman, Sienna Ruiz, Victoria Leigh Brown, Jean Hunleth

Erratum issuedAbstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors.

Janet NjelesaniNew York University, New York, NY, USA. janet.njelesani@nyu.edu.
Lindsey KaufmanWashington University in St. Louis, St. Louis, USA.
Sienna RuizWashington University in St. Louis, St. Louis, USA.
Victoria Leigh BrownWashington University in St. Louis, St. Louis, USA.
Jean HunlethWashington University in St. Louis, St. Louis, USA.

Funding

Clinical Outcomes Research Training in Female Lower Urinary Tract DisordersT32DK120497 · NIDDK · WASHINGTON UNIVERSITY · PI LOWDER, JERRY LANE, SUTCLIFFE, SIOBHAN · 2020 to 2024
$879k
NIDDK NIH HHS T32 DK120497NIDDK NIH HHS T32DK120497
6 · The paper itself

Abstract

purposeFamily members play an essential role in cancer care, but greater attention is needed on how young people who are providing this care for their parents with cancer can be supported. The aim of this qualitative study was to identify strategies for allied healthcare providers to support young caregivers caring for parents with cancer.

methodsWe conducted semi-structured interviews with 56 participants, including young caregivers (n = 10), parent survivor (n = 12), and allied healthcare providers (n = 34). Interviews were audio-taped, transcribed verbatim, and analyzed using a qualitative content analysis approach.

resultsFindings illuminate that young people are giving care with limited or no training and are not receiving intervention, support, or assistance from allied healthcare providers. Participants recognized that greater support is needed to meet young caregivers' needs, and the nature of the support needed changes over the course of cancer treatment. Allied healthcare providers could support young people through skills training, social and emotional support, and connecting to community resources.

conclusionsFindings reveal the unique and dynamic needs of young caregivers and underscore the need for healthcare systems to expand their support models to include these young, often invisible, caregivers. IMPLICATIONS FOR CANCER SURVIVORS: Given the chronic nature of cancer, the number of young caregivers is likely to increase; therefore, allied health professionals need to be better at identifying and supporting them as part of the family-centered cancer care provided.

Indexed as

Cancer survivorCaregiverChildrenParentYouth

Identifiers

PMID40358905
PMCPMC12696719

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.