Evidence map›Paper›PMID 40343562›Full record

ArticleCulture, medicine and psychiatry2025

'Why Bother?' Skeptical Doubt and Moral Imagination in Care for People with Profound Intellectual Disabilities.

Simon van der Weele

Abstract read
In one paragraph

Article in Culture, medicine and psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Simon van der WeeleUniversity of Humanistic Studies, Kromme Nieuwegracht 29, 3512 HD, Utrecht, The Netherlands. s.vanderweele@uvh.nl.ORCID http://orcid.org/0000-0001-9931-2394

Funding

ZonMw 854011001
6 · The paper itself

Abstract

Caring well for people with profound intellectual disabilities is challenging. This challenge is often framed in terms of their complex needs and the ambiguity of interpreting these needs. Based on ethnographic fieldwork, this article argues that behind these challenges lies a more fundamental challenge of doubt: doubt stemming from uncertainties about the mind of the other, and thus about the purpose of care itself. Drawing on Stanley Cavell's notion of skepticism, the article explores how this challenge arises and how caregivers grapple with it. The study finds that skeptical doubt always threatens care for people with profound intellectual disabilities, but often remains unseen. This is because caregivers deftly manage to ward off their skeptical doubt, by 'placing people into life': imagining the people in their care as participants in a shared human everyday life. The article tracks such exercises of 'placing people into life' to document how caregivers manage to retain faith in the purpose of their care. In this way, the article gives ethnographic texture to the challenge of caring well for people with profound intellectual disabilities and gathers clues for improving this care-which can also aid in improving care in other contexts of cognitive difference.

Indexed as

CaregiversImaginationIntellectual DisabilityMoralsAdultAnthropology, CulturalFemaleHumansMaleCareEmpirical ethicsImaginationProfound intellectual disabilitySkepticism

Identifiers

PMID40343562
PMCPMC12374859

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.