Evidence map›Paper›PMID 40338307›Full record

ArticleRheumatology international2025

Implementation of a novel patient reported experience measure (PREM) in rheumatology: a cross-sectional online survey of Australian rheumatology outpatients.

Madeleine J Bryant, Susan Lester, Oscar Russell, Samuel Whittle, Vidya Limaye, Susanna Proudman, Rachel J Black, Catherine L Hill

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Rheumatology international, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Patient opinion in rheumatology matters.Rheumatology international · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Madeleine J BryantSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia. Madeleine.Bryant@sa.gov.au.ORCID http://orcid.org/0000-0002-7946-8620
Susan LesterSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0003-3013-2701
Oscar RussellSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0002-7134-6362
Samuel WhittleSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0001-7417-7691
Vidya LimayeSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0002-8142-9532
Susanna ProudmanSchool of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0002-3046-9884
Rachel J Black *School of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0001-6600-7430
Catherine L Hill *School of Medicine, Faculty of Health Sciences, University of Adelaide, Adelaide, South Australia, Australia.ORCID http://orcid.org/0000-0001-8289-4922

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

To determine rheumatology patient care experience using the novel Commissioning for Quality in Rheumatoid Arthritis-PREM-Australian version (CQRA-PREM-AU). Patients attending Central Adelaide Local Health Network rheumatology outpatient clinics were invited to complete a cross-sectional web-based survey, comprising CQRA-PREM-AU (22 items, 8 domains, scored 1-5), demographics, Patient Global Assessment (PGA) and Patient Reported Disease Activity (PRDA) Visual Analogue Scales (VAS) (scored 0-100), Single Item Literacy Screener (SILS). Analysed were multivariable linear regression analysis of CQRA-PREM-AU overall score with patient-related covariates (diagnosis, age, sex, SILS, PGA, PRDA), and univariate regression analysis with clinic-related covariates (site, nurse contact, type/number of consultations). Response rate was 1408/4591(31%). 214 incomplete records were excluded; 1194 records were analysed. Respondent characteristics: 68% female, median age 64 years (IQR 54, 73), 29% rural, 7% non-English language at home. PGA median score 50 (IQR 27, 63) and PRDA median score 50 (IQR 26, 69). CQRA-PREM-AU Domain 1 (regarding patient Needs and Preferences) had the best overall mean score (4.1, SD 0.86). Scored poorly were Domain 3 (Information about care, 3.5, SD 0.89), Domain 4 (Daily living, 3.5, SD 1.06) and Domain 5 (Emotional care, 3.6, SD 1.04). Worse PGA, and diagnoses of systemic lupus erythematosus, "other", or "unknown" were all associated with significantly lower CQRA-PREM-AU score (p < 0.01). Older age, and rheumatology nurse contact were associated with better experience score (p < 0.01). Use of CQRA-PREM-AU highlights the association between contact with a rheumatology nurse and better care experience, and identifies other targets for improving healthcare delivery.

Indexed as

Arthritis, RheumatoidPatient Reported Outcome MeasuresQuality Indicators, Health CareRheumatologyAdultAgedAustraliaCross-Sectional StudiesFemaleHealth Care SurveysHumansInternetLinear ModelsMaleMiddle AgedOutpatientsOutpatientsPatient carePatient outcome assessmentPatient reported outcome measuresRheumatologySurveys and questionnaires

Identifiers

PMID40338307
PMCPMC12062103

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.