Evidence map›Paper›PMID 40336436›Full record

ArticleSouth African family practice : official journal of the South African Academy of Family Practice/Primary Care2025

Understanding the dignity experience of South African patients in primary palliative care.

Raksha Balbadhur, Elizabeth Gwyther

Abstract read
In one paragraph

Article in South African family practice : official journal of the South African Academy of Family Practice/Primary Care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

2 authors.

Raksha BalbadhurDivision of Interdisciplinary Palliative Care and Medicine, Department of Family, Community and Emergency Care, Faculty of Health Sciences, University of Cape Town, Cape Town. raksha56@gmail.com.
Elizabeth Gwyther

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTo meet the goals of primary palliative care for patients with advanced disease and to provide holistic patient-centred compassionate care that respects the experience of patients, dignity in its entirety needs to be understood from the patients' perspective. There are no studies to understand the predominant factors that impact the dignity experience of South African patients with advanced disease.

methodsThis was a descriptive qualitative study where a semi-structured interview guide was used to understand the dignity experience of adult patients with advanced disease (Stage IV cancer, AIDS, people living with human immunodeficiency virus [HIV]), receiving home care from two hospices in the North of Durban, KwaZulu-Natal. Purposive sampling was used to identify 14 patients from culturally, linguistically and socioeconomically diverse populations representative of South Africa. In-depth interviews allowed for an exploration of participants' lived experiences. Interviews were audiotaped and transcribed verbatim. Data were analysed using thematic analysis.

resultsFour major themes and numerous sub-themes defined the total dignity experience. The themes were: (1) Physical Concerns; (2) Psychological Concerns and coping mechanisms; (3) Social Concerns; and (4) Spiritual Concerns and coping mechanisms. Sub-themes are described in the main article.

conclusionWith awareness of the factors that affect the total dignity experience, healthcare providers can be considerate of and offer optimal dignity-conserving compassionate care to respect and improve the quality of life of South African patients living with advanced disease.Contribution: This study extensively explored new knowledge on the total dignity experience of South African patients with advanced disease.

Indexed as

Palliative CarePersonhoodRespectAdaptation, PsychologicalAdultAgedFemaleHIV InfectionsHumansInterviews as TopicMaleMiddle AgedNeoplasmsPrimary Health CareQualitative ResearchSouth AfricaAIDScancercompassionate caredignitypainpalliative carepsycho-existential distressSouth Africa

Identifiers

PMID40336436
PMCPMC12067605

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