ArticleJournal of pain and symptom management2025
Content and Comprehensiveness of Goals-of-Care Documentation in Pediatric Patients.
Article in Journal of pain and symptom management, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Core Elements of Goals of Care Initiatives Across Eight Health Systems.Journal of pain and symptom management · 2026Article
- Experiences with an Advance Care Planning Intervention for Children with Life-Limiting Conditions: A Qualitative Study of Families and Clinicians Using the IMplementing Pediatric Advance Care Planning Toolkit.Children (Basel, Switzerland) · 2026Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
contextDocumented goals-of-care (GOC) conversations promote goal-concordant care; few studies have evaluated the comprehensiveness of this documentation within pediatrics.
objectiveTo evaluate the content of pediatric GOC documentation within a health system.
methodsGOC notes were written between August 7, 2016 and September 8, 2023 for patients ≤18 years old at one academic health system. Notes were identified by related GOC-specific "text markers" in the electronic health record. A pediatric GOC codebook was adapted from existing frameworks. Notes were evaluated for the presence of each of seven components from the codebook. Misfiled GOC notes were excluded from analysis.
resultsA total of 429 notes were written in the inpatient or outpatient setting across pediatric specialties. Most notes were written by the palliative care service (77.9%) and by attending physicians (77.4%). Most patients were <1 (41.0%) or 1-6 years old (23.4%), non-Hispanic (82.9%), and spoke English (90.2%). Of the 91 patients (44.4%) who died before September 8, 2023, the median number of days between their first GOC note and death was 10.3 days (interquartile range (IQR) 1.6-49.0). The median number of GOC components per note was 5.0 out of 7 possible (IQR 4.0-5.5). Frequently documented GOC components were discussion participants (98.1%), goals/fears/priorities (87.6%), and treatment decisions (85.3%). Infrequent components were end-of-life care planning (33.3%) and information preferences (9.8%).
conclusionPediatric GOC notes included most GOC components; however, number of components may not reflect the quality and depth of actual discussions. Future research should assess GOC documentation for pediatric patients from diverse backgrounds.
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