Evidence map›Paper›PMID 40331733›Full record

ArticleCancer medicine2025

Lack of Routine Health Care Among Adult Survivors of Childhood, Adolescent, and Young Adult Cancers (CAYA): A Nationally Representative Study of 4300 Survivors.

Andrea C Betts, Rebecca Eary, Bhaskar Thakur, Amy Hughes, Quiera S Booker, L Aubree Shay, Simon Craddock Lee, Daniel C Bowers, Bijal A Balasubramanian

Abstract read
In one paragraph

Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. "I felt so seen": Perspectives on age-appropriate, needs-based survivorship care among young adult survivors of childhood, adolescent, or young adult cancers (CAYA).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Andrea C BettsDepartment of Health Promotion and Behavioral Sciences, School of Public Health, The University of Texas Health Science Center at Houston, Dallas, Texas, USA.ORCID https://orcid.org/0000-0003-0884-6513
Rebecca EaryDepartment of Family and Community Medicine, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Bhaskar ThakurDepartment of Family and Community Medicine, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Amy HughesPeter O'Donnell Jr. School of Public Health, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Quiera S BookerDivision of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, Maryland, USA.
L Aubree ShayDepartment of Health Promotion and Behavioral Sciences, School of Public Health, The University of Texas Health Science Center at Houston, Dallas, Texas, USA.
Simon Craddock LeeDepartment of Population Health, University of Kansas Cancer Center and School of Medicine, Kansas City, Kansas, USA.ORCID https://orcid.org/0000-0001-6345-1237
Daniel C BowersDepartment of Pediatrics, University of Texas Southwestern Medical Center, Dallas, Texas, USA.ORCID https://orcid.org/0000-0002-3947-2481
Bijal A BalasubramanianDepartment of Epidemiology, School of Public Health, The University of Texas Health Science Center at Houston, Dallas, Texas, USA.

Funding

Transgenic & Gene-Targeting Shared ResourceP30CA168524 · NCI · UNIVERSITY OF KANSAS MEDICAL CENTER · PI ROY A. JENSEN · 2012 to 2026
$40.1M
NCI NIH HHS P30CA168524NIH HHS 5UL1RR024148-03
6 · The paper itself

Abstract

backgroundSurvivors of childhood, adolescent, and young adult cancers (CAYA) experience lifelong health risks and accelerated aging. We examined routine health care (no routine checkup in the past year) among a nationally representative sample of CAYA survivors at different life stages.

methodsWe pooled data from the Behavioral Risk Factor Surveillance System (BRFSS; 2012, 2014, 2016-2019). CAYA survivors (ages 0-39 at cancer diagnosis) were young adults (18-39 years), middle-aged (40-64 years), or older adults (≥ 65 years) at the time of the survey. We estimated the prevalence of: (1) not receiving routine health care and (2) not having a personal doctor, overall and by age at survey. We used multivariable Poisson regression to identify factors associated with these outcomes.

resultsWe identified 4284 CAYA survivors: 884 young adults, 2201 middle-aged, and 1199 older adults. More young adults were uninsured and unable to afford care, compared to other age groups. A higher proportion of young adults did not receive routine health care (35.9%, 95% CI 30.3-41.9) or have a personal doctor (25.6%, 95% CI 20.5-31.4), compared to middle-aged or older CAYA survivors (p < 0.01). In multivariable models, being a young adult was strongly associated with (1) not receiving routine health care (aPR 1.82, 95% CI 1.24-2.67) and (2) not having a personal doctor (aPR 3.14, 95% CI 1.84-5.35).

conclusionsYounger CAYA survivors experience a triple threat of chronic conditions, modifiable risks, and disconnection from routine health care. IMPACT: Early interventions to facilitate care transitions are needed.

Indexed as

Cancer SurvivorsHealth Services AccessibilityNeoplasmsAdolescentAdultAgedBehavioral Risk Factor Surveillance SystemChildChild, PreschoolFemaleHumansInfantInfant, NewbornMaleMiddle AgedUnited Statesadolescent young adult cancercancer survivorshipchildhood cancerhealth care transitionshealth services researchprimary care

Identifiers

PMID40331733
PMCPMC12056925

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.