Evidence map›Paper›PMID 40329204›Full record

ArticleBMC pregnancy and childbirth2025

Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents.

Marcela Tenorio D, Johanna Sagner-Tapia, Renata Garibaldi, Vaso Totsika

Abstract read
In one paragraph

Article in BMC pregnancy and childbirth, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Marcela Tenorio DCentro de Investigación para la Mejora de los Aprendizajes, Facultad de Educación, Universidad del Desarrollo, Las Condes, Chile.ORCID http://orcid.org/0000-0003-0859-6462
Johanna Sagner-TapiaMillennium Institute for Care Research (MICARE), Santiago, Chile.ORCID http://orcid.org/0000-0003-1550-8512
Renata GaribaldiMillennium Institute for Care Research (MICARE), Santiago, Chile.ORCID http://orcid.org/0009-0001-5666-4135
Vaso TotsikaMillennium Institute for Care Research (MICARE), Santiago, Chile. v.totsika@ucl.ac.uk.ORCID http://orcid.org/0000-0003-1702-2727

Funding

ANID - Millennium Science Initiative Program - Millennium Institute for Care Research ICS2019_024ANID - Millennium Science Initiative Program - Millennium Nucleus Studies on Disability and Citizenship (DISCA) NCS2022_039Fondo Nacional de Desarrollo Científico y Tecnológico CHILE 11241078Fondo Nacional de Desarrollo Científico y Tecnológico CHILE 1221400
6 · The paper itself

Abstract

The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal experiences with receiving a Down syndrome diagnosis. A total of 40 mothers participated, 42.5% received a prenatal diagnosis, 17.5% received the diagnosis during labor and delivery, and 40% received the information at the early postnatal period. Through reflexive thematic analysis, four key themes emerged: (1) About Who and How the News Was Delivered (2), About When the News Was Delivered (3), On Where the News Should Be Delivered (4), parents' positive experiences emerging from this, predominantly, negative episode. Our findings emphasize the need for improved training for healthcare professionals in delivering sensitive diagnoses, with an emphasis on empathy, accurate information, and support resources for families.

Indexed as

CommunicationDown SyndromeMothersPrenatal DiagnosisTruth DisclosureAdultEmpathyFemaleHumansParentsPregnancyQualitative ResearchYoung AdultDown syndrome diagnosisEmpathyHealthcare communicationMaternal experiencePrenatal diagnosisSupport

Identifiers

PMID40329204
PMCPMC12054234

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.