ArticleInternational journal of community based nursing and midwifery2025
Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis.
Article in International journal of community based nursing and midwifery, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- End-of-Life Care in Sickle Cell Disease and Transfusion-Dependent β-Thalassemia: Clinical, Psychosocial, and Ethical Considerations.Mediterranean journal of hematology and infectious diseases · 2026Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Due to the long-term and progressive nature of β-thalassemia major (β-TM), patients need comprehensive palliative and supportive care covering physical, mental, social, and spiritual aspects. The first step in providing palliative and supportive care is identifying the patients' needs. This study aimed to explore the palliative and supportive care needs of patients with β-TM. Methods: A qualitative study was conducted from April 2019 to December 2019. The study involved in-depth semi-structured individual interviews with 20 individuals living with β-TM at a university hospital in Ahvaz, Iran. The participants were selected through purposive sampling. Interviews continued until the saturation of data. All interviews were recorded, transcribed, and analyzed with conventional content analysis following the steps recommended by Elo and Kyngäs using MAXQDA software version 10. Results: Conclusion: According to the results of this study, unmet needs are prevalent throughout the thalassemia journey. Patients with β-TM require individual, psychosocial, and comprehensive healthcare support to address their needs. Therefore, further research is necessary to develop a nursing care plan for β-TM patients focusing on supportive-palliative care needs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.