ArticleInternal medicine journal2025
'No man's land': the journey of young adults with complex care needs, from paediatric to adult healthcare.
Article in Internal medicine journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
5 authors.
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Abstract
backgroundTransition to adulthood can be a challenging time. For people with complex health needs, there is an additional burden of navigating a fragmented healthcare system.
aimsTo identify the challenges faced by young people with complex health needs in the transition journey from their perspective.
methodsHealth journey mapping (HJM) methodology and semi-structured interviews were utilised to generate rich, detailed narratives. This article focuses on the perspective of patients and families, reporting on thematic analysis of multiple journey narratives during care as a child and through transition to adult healthcare.
resultsFive main themes were identified: transition is a no man's land; the adult health system requires more active navigation; appropriate care is not routine; parent as champion; and healthcare is a hostile environment. In advocating for their unmet needs, the young participants, and their families, were brought into conflict with the healthcare system from early in the journey, an outcome that may harm future healthcare relationships and trust.
conclusionDespite existing models and policies, the perception of young adults with complex healthcare needs and their families is that transition from paediatric to adult care can be a hostile process and lacks a consistent structured approach. Transition often occurs against a background of prior negative experiences, exacerbating the adversarial relationship with the healthcare system. This study allows us to hear the voices of healthcare consumers and provides an opportunity to reflect on practice. An informed response by healthcare practitioners to advocacy by patients and families that seeks to reduce conflict may reduce harm and enhance future healthcare relationships and trust across the healthcare system.
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