Evidence map›Paper›PMID 40318197›Full record

ArticleJournal of clinical psychology2025

Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder.

Emy Nimbley, Kyle Buchan, Ellen Maloney, Sarah Kettley, Michelle Sader, Fiona Duffy, Karri Gillespie-Smith

Abstract read
In one paragraph

Article in Journal of clinical psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Artificial intelligence-assisted visual elicitation in anorexia nervosa : Qualitative case studies.Neuropsychiatrie : Klinik, Diagnostik, Therapie und Rehabilitation : Organ der Gesellschaft Osterreichischer Nervenarzte und Psychiater · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Emy NimbleySchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.ORCID 0000-0002-5888-1555
Kyle BuchanSchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.
Ellen MaloneySchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.
Sarah KettleyEating Disorder and Autism Collaborative (EDAC), University of Edinburgh, Scotland, Edinburgh, UK.
Michelle SaderSchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.
Fiona DuffySchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.
Karri Gillespie-SmithSchool of Health in Social Science, University of Edinburgh, Scotland, Edinburgh, UK.

Funding

Financial support was provided by the UK Research and Innovation (UKRI), Medical Research Foundation (MRF) and National Institute for Health and Care Research (NIHR) through the Eating Disorder and Autism Collaborative (EDAC; grant number: MR/X03058X/1).
6 · The paper itself

Abstract

OBJECTIVE(S): Autism and Autistic traits are heightened in individuals with eating disorders (EDs), with Autistic people reporting poorer treatment outcomes and experiences. Despite this, mechanisms of this overlap remain poorly understood, perhaps due to an exclusion of lived experience perspectives in setting research agendas. The study therefore sought to identify research priorities for Autistic people with an eating disorder (ED) by using accessible and inclusive arts-based research methodologies.

methodsResearch questions were explored using Photovoice, a creative research methodology involving the creation and discussion of images. 14 participants attended group workshops, in two of which they explored research priorities for Autistic people with an ED. Images and transcripts were analysed using an adapted Photovoice Question Matrix (production, content and meaning of the image) and thematic analysis. Participants had the opportunity to provide feedback on emerging themes before themes were finalised.

resultsFive themes were identified that highlighted research priorities for Autistic people with an ED: (1) Impact of early experiences (with subthemes Internalizing of socio-cultural food and body narratives and generational cycles); (2) Function of the ED (with sub-themes ED as a regulatory strategy and ED as a social acceptance strategy); (3) Barriers and facilitators to ED recovery (with sub-themes Autistic traits as barriers, Autistic traits as facilitators and Help and harm of unravelling); (4) Understanding and accommodating for complexity (with sub-themes Co-occurring conditions and Intersectionality); and (5) Changing research culture (with sub-themes Inclusive and participatory research and Nonclinical support). DISCUSSION: Study findings are contextualised within existing autism and ED research, highlighting avenues for future research and making recommendations for future research questions. By identifying community-driven research priorities, it is hoped that study findings will inspire novel, interdisciplinary and co-produced research that will serve as a meaningful evidence base towards improving the lives of Autistic people with an ED.

Indexed as

Autistic DisorderFeeding and Eating DisordersPhotographyAdultFemaleHumansMaleMiddle AgedQualitative ResearchResearchYoung Adultautismeating disordersphotovoice

Identifiers

PMID40318197
PMCPMC12228086

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.