Evidence map›Paper›PMID 40318054›Full record

ArticleJournal of the American Geriatrics Society2025

Undocumented Dementia Diagnosis During Skilled Home Health Care: Prevalence and Associated Factors.

Julia G Burgdorf, Halima Amjad, Yolanda Barrón, Miriam Ryvicker

Abstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Applying the Brief Interview for Mental Status in a Diverse Home Health Patient Population.Journal of the American Medical Directors Association · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julia G BurgdorfCenter for Home Care Policy & Research, at VNS Health, New York, New York, USA.ORCID 0000-0002-3356-1897
Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Yolanda BarrónCenter for Home Care Policy & Research, at VNS Health, New York, New York, USA.
Miriam RyvickerCenter for Home Care Policy & Research, at VNS Health, New York, New York, USA.

Funding

Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
Supporting Dementia Caregivers During Medicare Home Health: Developing the DECLARE Needs Assessment InterventionK01AG081502 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI Julia Burgdorf · 2023 to 2026
$534k
Effects of Family Caregiver Availability and Capacity on Home Health Care for Older Adults with Alzheimer's Disease and Related DementiasR03AG080082 · NIA · VISITING NURSE SERVICE OF NEW YORK · PI BURGDORF, JULIA · 2023 to 2024
$181k
NIA NIH HHS K01 AG081502NIA NIH HHS K01AG081502NIA NIH HHS K23 AG064036NIA NIH HHS K23AG064036NIA NIH HHS R03 AG080082NIA NIH HHS R03AG080082
6 · The paper itself

Abstract

backgroundSkilled home health (HH) is a critical source of clinical care for community-living older adults. One-third of HH patients have dementia, but poor information transfer may limit HH providers' awareness of dementia diagnosis. We determined the prevalence of undocumented dementia diagnosis among HH patients and associated care delivery patterns and clinical outcomes.

methodsAmong a 2018 national sample of Medicare HH patients, we compared those (1) without diagnosed dementia, (2) with dementia documented during HH, (3) with dementia undocumented during HH. Dementia diagnosis was determined from the Medicare Beneficiary Summary File claims-based indicator and documentation was determined via HH clinical assessments (OASIS). We measured HH care delivery and outcomes from claims and assessment data. We fit multivariable negative binomial and logistic regression models to estimate associations of dementia status and documentation with outcomes, while adjusting for patient- and HH agency-level characteristics and clustering at the HH agency level.

resultsAmong 1,372,570 HH patients, 30% had diagnosed dementia. Among those with diagnosed dementia, most (69%) had this diagnosis go undocumented during HH. Compared to those with documented dementia, those with undocumented dementia had longer lengths of stay (+3.1 days; 95% CI: 6.4-7.1) and were more likely to receive physical therapy (aOR: 1.19; 95% CI: 1.16-1.22) and less likely to receive social work (aOR: 0.82; 95% CI: 0.80-0.84). Compared to those with documented dementia, those with undocumented dementia had higher odds of hospitalization (aOR: 1.20; 95% CI: 1.17-1.24) and Emergency Department use (aOR: 1.14; 95% CI: 1.11-1.17) and lower odds of discharge to self-care (aOR: 0.88; 95% CI: 0.86-0.90). Findings were robust to sensitivity analyses stratifying by cognitive symptom severity, functional impairment, clinical severity, and referral source.

conclusionsResults suggest that HH providers often lack pertinent information regarding patients' dementia status, and patients with undocumented dementia more often experience acute care utilization.

Indexed as

DementiaHome Care ServicesAgedAged, 80 and overFemaleHumansMaleMedicarePrevalenceUnited StatesAlzheimer'sdementiahome carehome healthMedicare

Identifiers

PMID40318054
PMCPMC12893341

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.