Evidence map›Paper›PMID 40317594›Full record

ArticleAustralasian journal on ageing2025

Could life story work support relational autonomy in advance care planning? Stories from the EARLI project.

Ava Karusoo-Musumeci, Ling Yeoh, Caroline Edwards, Rebecca Walton, Melanie Crabtree, Michelle M Hilgeman, Craig Sinclair

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Article in Australasian journal on ageing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Ava Karusoo-MusumeciNeuroscience Research Australia, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-0816-5742
Ling YeohNeuroscience Research Australia, Sydney, New South Wales, Australia.
Caroline EdwardsNeuroscience Research Australia, Sydney, New South Wales, Australia.ORCID https://orcid.org/0009-0005-0730-0254
Rebecca WaltonBrightwater Group, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0001-7240-5187
Melanie CrabtreeNeuroscience Research Australia, Sydney, New South Wales, Australia.
Michelle M HilgemanThe University of Alabama, Tuscaloosa, Alabama, USA.
Craig SinclairNeuroscience Research Australia, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-2734-2951

Funding

National Health and Medical Research Council GNT2006283
6 · The paper itself

Abstract

objectivesAdvance care planning has evolved from a narrow focus on advance directives completion towards a greater emphasis on ongoing conversations and value clarification. This evolution aligns with a relational perspective on autonomy in a social context. However, limited research explores how relational autonomy might be operationalised in practice. Life story work is a novel approach that may serve to operationalise relational autonomy in advance care planning.

methodsThis paper presents three vignettes from the Enhanced Advance Care Planning and Life Review Longitudinal Intervention (EARLI) project, an arts-based intervention that uses life story work to support advance care planning among older adults living in the community.

resultsThe vignettes illustrated how life story work facilitated discussions about values and preferences, enhanced relational autonomy and influenced participants' engagement with advance care planning across different stages.

conclusionsIntegrating life story work into advance care planning provides a practical approach to fostering relational autonomy. This method offers insight into the ways personal narratives can shape decision-making and communication within the advance care planning process.

Indexed as

Advance Care PlanningAdvance DirectivesAgingNarrationPersonal AutonomyRelational AutonomyAgedAged, 80 and overCommunicationFemaleHealth Knowledge, Attitudes, PracticeHumansMaleadvance care planningagedrelational autonomy

Identifiers

PMID40317594
PMCPMC12048695

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LicenceCC BY
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.