ArticleBMC nephrology2025
"You can't put your luck on people": a qualitative study of family views on the best interests decision-making process concerning adult kidney care in England.
Article in BMC nephrology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
1 citing paper in PubMed.
- End-of-life care planning for ethnically diverse kidney patients in the COVID-19 era.BMC nephrology · 2026Article
Corrections and comments
- Erratum issued
Authors and funding
3 authors.
Funding
Abstract
backgroundWhen an adult patient lacks decision-making capacity, care decisions must be made on their behalf in their "best interests". We know little about the experiences of the family members of adult kidney patients with cognitive impairments, particularly in relation to best interests decisions. It is anticipated that they have varied experiences, with many feeling excluded from the most complex care decisions.
methodsThis study aimed to understand the views and experiences of family members of adult kidney patients who had undergone a best interests decision in England. Semi-structured interviews (n = 6) were conducted with family members to explore their experiences and their views of the best interests process. Interview transcripts were then thematically analysed.
resultsA range of experiences were reported, with four themes developed: prioritising patient preferences; family involvement; opposition to the best interests approach; and the importance of communication amongst all involved. Our findings suggest inconsistencies in how best interests decisions are approached in England, which can affect the nature and extent of family involvement. Participants highlighted the value of clear communication on all aspects of the decision-making process, including clarity on the roles of different stakeholders.
conclusionsWhen caring for adults who lack decision-making capacity, improvements in communication amongst all involved may minimise disagreements that escalate to legal proceedings.
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