Evidence map›Paper›PMID 40309132›Full record

ArticleJournal of healthcare informatics research2025

Understanding Complexities in Collaborative Management of Knowledge on Advance Care Planning for Multi-morbid Patients Within Personalized Integrated Care.

Fiona P Tulinayo, Ana Ortega-Gil, Nerea González, Irati Erreguerena, Bárbara López Perea, Iñaki Saralegui, Beñat Zubeltzu, Ane Fullaondo, Dolores Verdoy, Esteban de Manuel Keenoy

Abstract read
In one paragraph

Article in Journal of healthcare informatics research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Fiona P TulinayoInformation Technology Department, College of Computing & Information Sciences, Makerere University, Kampala, Uganda.
Ana Ortega-GilBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.
Nerea GonzálezBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.
Irati ErreguerenaBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.
Bárbara López PereaNetwork for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Cuenca, Spain.
Iñaki SaraleguiOsakidetza Basque Health Service, OSI Araba, Basque Country, Bilbao, Spain.
Beñat ZubeltzuOsakidetza Basque Health Service, OSI Araba, Basque Country, Bilbao, Spain.
Ane FullaondoBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.
Dolores VerdoyBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.
Esteban de Manuel KeenoyBiosistemak Institute for Health Systems Research, Basque Country, Barakaldo, Spain.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Healthcare has shifted from paternalistic model of care to patient-centered care where shared decision making is key. The need to share and manage contributions and expertise of different healthcare professionals underlines the relevance of collaborative knowledge management (CKM). However, CKM in healthcare requires one to understand the complexities in integrating multiple aspects of care and the challenges associated with interdisciplinary collaboration and knowledge sharing among healthcare providers. In this study, we use a system modeling approach to understand the complexities in collaborative management of knowledge on advance care planning for multi-morbid patients, within personalized integrated care. To achieve this, focus group discussions (FGD) with 11 participants from Basque Public Health System (Osakidetza) in Spain were involved in identifying the key challenges and developing a systemic thinking model. As a result, three key challenges were identified, i.e., (1) culture, where citizens are not willing to talk about death; (2) healthcare professionals, whose attitude and perspectives need to change; and (3) the current system, that has to change its care model towards a holistic and a shared care model. From the developed causal loop diagrams (CLDs), it is noted that perpetuation of fragmented and paternalistic care is likely to get worse without recognition of the advance care plan (ACP) as a social need and as a crucial part of the clinical practice change. Supplementary Information: The online version contains supplementary material available at 10.1007/s41666-025-00185-w.

Indexed as

Collaborative knowledge management and advance care planSystem modelingSystem thinking

Identifiers

PMID40309132
PMCPMC12037948

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.