Evidence map›Paper›PMID 40308739›Full record

ArticleInternational journal of population data science2025

Discovering linked data collections through a new national metadata platform.

Kate M Miller, Felicity S Flack, Merran B Smith, Vicki Bennett, Carina Ecremen Marshall

Abstract read
In one paragraph

Article in International journal of population data science, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Kate M MillerPopulation Health Research Network, University of Western Australia, Crawley, Western Australia, Australia.
Felicity S FlackPopulation Health Research Network, University of Western Australia, Crawley, Western Australia, Australia.
Merran B SmithPopulation Health Research Network, University of Western Australia, Crawley, Western Australia, Australia.
Vicki BennettAustralian Institute of Health and Welfare, Canberra, Australian Capital Territory, Australia.
Carina Ecremen MarshallPopulation Health Research Network, University of Western Australia, Crawley, Western Australia, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Metadata plays a crucial role in the health research infrastructure ecosystem. Despite the abundance of metadata for data collections in Australia, the vast and diverse data custodian landscape poses challenges for linked data researchers to find relevant information for multiple data collections, often making it an arduous and time-intensive task. Methods: The project comprised three phases: an initial scoping exercise to understand the current state of metadata and related best practice; a national consultation involving researchers, data linkage staff and data custodians to develop a high-fidelity prototype of a metadata platform; and a final build and implementation phase. The platform underwent several prototyping and testing cycles to refine the digital experience. Results: Expert interviews confirmed that there is a wealth of metadata available, but it is difficult for researchers to access and evaluate. Consultations with researchers identified opportunities to standardise metadata across collections and provide a centralised platform to enhance the discoverability of data collections for research using linked data. High value platform features included searching, browsing and filtering capabilities, data item list metadata, standardised formats, sample data, and frequently asked questions. The final design and functionality reflected user consultations and data custodian input on feasibility. Conclusion: The Population Health Research Network developed a metadata platform to enable researchers to evaluate the suitability of Australian data collections for linked data projects more effectively. The platform has standardised the way in which metadata is presented for data collections nationally. Improved metadata quality, readability and accessibility will save time and enhance the quality of applications for linked data.

Indexed as

Data CollectionMetadataAustraliaHumansadministrative datadata collectionsdata linkagehealthmetadatarecord linkage

Identifiers

PMID40308739
PMCPMC12042732

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.