Evidence map›Paper›PMID 40307304›Full record

ArticleNPJ genomic medicine2025

The Australian LINEAGE Study: advancing and implementing international guidance on genomic data within local governance frameworks.

Tamra Lysaght, Rachel Ankeny, Alex Brown, Rebekah McWhirter, Dianne Nicol, Margaret Otlowski, Bernadette Richards, Ainsley J Newson

Abstract read
In one paragraph

Article in NPJ genomic medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Genomic Data Governance Challenges Between Research and Clinical Care: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Tamra LysaghtSydney Health Ethics, Sydney School of Public Health, The University of Sydney, Faculty of Medicine and Health, Sydney, NSW, Australia. tamra.lysaght@sydney.edu.au.ORCID http://orcid.org/0000-0002-7125-4206
Rachel AnkenySchool of Humanities, Faculty of Arts, Business, Law and Economic, University of Adelaide, Adelaide, SA, Australia.
Alex BrownNational Centre for Indigenous Genomics, John Curtin School of Medical Research, Australian National University, Canberra, ACT, Australia.
Rebekah McWhirterCollege of Law, Governance and Policy, Australian National University, Canberra, ACT, Australia.ORCID http://orcid.org/0000-0002-9409-8074
Dianne NicolCentre for Law and Genetics, School of Law, College of Arts, Law and Education, University of Tasmania, Tasmania, TAS, Australia.
Margaret OtlowskiCentre for Law and Genetics, School of Law, College of Arts, Law and Education, University of Tasmania, Tasmania, TAS, Australia.
Bernadette RichardsUniversity of Queensland Medicine School, Brisbane, QLD, Australia.
Ainsley J NewsonSydney Health Ethics, Sydney School of Public Health, The University of Sydney, Faculty of Medicine and Health, Sydney, NSW, Australia.ORCID http://orcid.org/0000-0002-3460-772X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Identifiers

PMID40307304
PMCPMC12043809

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.