Evidence map›Paper›PMID 40307295›Full record

ArticleNPJ Parkinson's disease2025

The diagnostic pathway of Parkinson's disease: understanding patient perspectives in Australia.

Tali Lang, Iain McLean, Jenna Shin, Victoria Jackson, Isobel Lawrenson, Belinda Zipper, Alex Yeung, Andrew Evans, Grant Dewson

Abstract read
In one paragraph

Article in NPJ Parkinson's disease, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Tali LangWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.ORCID http://orcid.org/0000-0003-4206-8743
Iain McLean *Walter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.
Jenna Shin *Walter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.ORCID http://orcid.org/0000-0001-7781-7906
Victoria JacksonWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.ORCID http://orcid.org/0000-0002-9758-9784
Isobel LawrensonWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.
Belinda ZipperWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.
Alex YeungWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia.ORCID http://orcid.org/0000-0002-9872-4714
Andrew EvansThe Royal Melbourne Hospital, Parkville, VIC, Australia.
Grant DewsonWalter and Eliza Hall Institute of Medical Research, Parkville, VIC, Australia. dewson@wehi.edu.au.ORCID http://orcid.org/0000-0003-4251-8898

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

There is limited data about experiences of people with Parkinson's (PwP) in Australia. This study, initiated and co-designed by PwP, surveyed 385 participants nationally (335 fully completed the questionnaire). Participants living in capital and regional city centers reported satisfaction with clinical care during diagnostic consultation at approximately 40%, with satisfaction less in rural areas (26%). 68% of participants reported inadequate involvement in discussions about treatment and care planning and 77% were dissatisfied with the support following diagnosis. Respondents reported low referral rates to allied health services such as physiotherapy (22%) and mental health services (17%). Feedback indicated support could improved by increased access to Parkinson's disease Clinical Nurse Specialists and to educational resources and support. Findings highlight the need to establish Australian guidelines for Parkinson's clinical management, greater resourcing for clinicians including development of educational programs, and creation of Australian-centric educational resources to improve quality of care for PwP.

Identifiers

PMID40307295
PMCPMC12043947

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.