Evidence map›Paper›PMID 40304638›Full record

ArticleNutrition and health2026

Behavioral telehealth intervention development for adolescents with celiac disease and their caregivers: The Gluten-Free Resilience and Overall Wellness (GROW) project.

Jack Vagadori, Paige J Trojanowski, Charlotte Keenan, Hong N T Bui, Catherine Raber, Gesala Perez-Junkera, Pamela Hinds, Randi Streisand, Michelle Harlan, Shayna Coburn

Abstract read
In one paragraph

Article in Nutrition and health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Developing Glow: A Co-Designed Support Framework Integrating Behavioural and Psychological Needs in Coeliac Disease.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jack VagadoriCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0001-7443-6438
Paige J TrojanowskiCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-4118-9087
Charlotte KeenanCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-3196-0691
Hong N T BuiCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-8782-0129
Catherine RaberCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0003-2832-8860
Gesala Perez-JunkeraCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-2779-5005
Pamela HindsCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0001-6491-6649
Randi StreisandCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-8535-8444
Michelle HarlanCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0002-7488-1993
Shayna CoburnCenter for Translational Research, Children's National Hospital, Washington, DC, USA.ORCID 0000-0001-9526-3580

Funding

A behavioral intervention to optimize self-management of celiac disease in adolescentsK23DK129826 · NIDDK · CHILDREN'S RESEARCH INSTITUTE · PI COBURN, SHAYNA SKELLEY · 2021 to 2025
$793k
NIDDK NIH HHS K23 DK129826
6 · The paper itself

Abstract

BackgroundCeliac disease (CD) is a chronic autoimmune condition that, when left untreated, increases the risk of significant health challenges. The only medical treatment for CD is a strict gluten-free diet (GFD), which is behaviorally dependent. Despite quality of life (QOL) and adherence being impacted by the complicated and burdensome nature of the GFD, there exists a paucity of established behavioral interventions aimed to improve adherence and QOL in adolescents with CD.AimsDevelop and refine the Gluten-Free Resilience and Overall Wellness (GROW) Project, the first family-centered, online behavioral intervention to improve QOL and GFD self-management in adolescents with CD and their parents.MethodsStudy staff adapted and refined an existing online behavioral intervention for adults with CD. Two rounds of interviews with patient, parent, and clinician stakeholders were conducted to collect feedback and inform the final intervention structure and content. Qualitative interview data were analyzed using inductive content analysis.ResultsStakeholder feedback supported a group-based, virtual format across both rounds of interviews. Participants proposed format changes to the intervention to increase participant engagement. Content suggestions included enhancing information about reliable digital resources, building resilience, GFD and alcohol, and the scientific development of the program.ConclusionThe GROW Project addresses a critical need for interventions that strengthen behavioral self-management strategies in adolescents with CD and their families by providing virtual skill-building and psychoeducation that may improve family's QOL while managing CD and the GFD.

Indexed as

CaregiversCeliac DiseaseDiet, Gluten-FreeTelemedicineAdolescentAdultFemaleHumansMaleParentsQuality of LifeResilience, PsychologicalSelf-Managementadherenceadolescentsbehavioral interventionsCeliac diseasequality of lifeself-management

Identifiers

PMID40304638
PMCPMC12771562

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.