ReviewResearch involvement and engagement2025
Supporting consumer engagement in health research about chronic conditions: a scoping review of evidence-based resources.
Review in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Translating scores into meaning: a co-produced forum for patient-reported outcome measure interpretation in pediatric congenital heart disease.Research involvement and engagement · 2026Article
- Who CaREs - We do: Development of a community and researcher engagement program in translational medicine.Research involvement and engagement · 2026Article
- Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Facilitating consumer partnerships in health research.Journal of translational medicine · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
CONTEXT AND
objective'Consumers' refers to individuals with lived experience of health issues, as well as their carers or family members, who are often referred to as patients or service users. The recognition of consumers' expertise through lived experience is increasingly acknowledged as essential in health research design. Involving consumers in research enhances relevance and fosters high-quality, consumer-centric outcomes. While previous reviews have examined resources that support consumer engagement in health research, this review aimed to identify evidence-based resources specifically designed for engaging consumers in research related to chronic conditions.
designWe conducted a scoping review to map diverse resources, using the Arksey and O'Malley framework, enhanced by Levac et al. and the Joanna Briggs Institute. DATA COLLECTION: A search strategy was developed using keywords related to consumer engagement and supporting resources, such as models, frameworks, and tools. Seven databases were searched: PubMed, Web of Science, Cochrane, Scopus, EconLit, PsycINFO, and ACM Digital Library, targeting peer-reviewed articles published between 2013 and 2023. ANALYSIS: We conducted a qualitative thematic analysis by coding the results sections of each included study line by line. The codes were inductively grouped into descriptive categories, which were then synthesised into analytical themes and sub-themes.
resultsFrom 15,245 identified articles, 15 met the inclusion criteria. An overarching framework for consumer engagement in health research related to chronic conditions was synthesised, comprising six themes: 1. Promoting reciprocal learning, 2. Fostering a supportive environment, 3. Providing training to build capacity, 4. Acknowledging consumer contributions, 5. Using resources to facilitate engagement, and 6. Evaluating engagement impact.
conclusionThis review integrates existing evidence-based resources for supporting consumer engagement in research about chronic conditions and presents an overarching framework. The findings offer valuable guidance for researchers aiming to effectively implement consumer engagement strategies tailored to individuals with chronic conditions.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.