Evidence map›Paper›PMID 40291466›Full record

ArticleGlobal qualitative nursing research

"It's Akin to Standing Alone on the Platform": A Qualitative Analysis of Family Caregivers' Perceived Benefits of Conversations with Professional Dementia Caregivers.

Frederik Schou-Juul, Lucca-Mathilde Thorup Ferm, Tine Tjørnhøj-Thomsen, Sigurd Lauridsen

Abstract read
In one paragraph

Article in Global qualitative nursing research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Frederik Schou-JuulUniversity of Southern Denmark, Copenhagen, Capital Region of Denmark, Denmark.ORCID https://orcid.org/0000-0002-1757-8875
Lucca-Mathilde Thorup FermUniversity of Southern Denmark, Copenhagen, Capital Region of Denmark, Denmark.
Tine Tjørnhøj-ThomsenUniversity of Southern Denmark, Copenhagen, Capital Region of Denmark, Denmark.
Sigurd LauridsenUniversity of Southern Denmark, Copenhagen, Capital Region of Denmark, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Family caregivers often face challenges in navigating care decisions and maintaining involvement after their relatives transition to long-term care facilities. This study explores family caregivers' perspectives on the benefits of engaging in conversations with professional caregivers in long-term dementia care. Semi-structured interviews were conducted with 17 family caregivers in Denmark. Using thematic and template analysis, five core themes were constructed, highlighting both emotional and practical motivations for communicating with healthcare professionals: (1) feeling disconnected and uninformed about their loved one's care, (2) managing emotional challenges while seeking reassurance, (3) leveraging professional expertise for guidance, (4) fostering collaboration through openness, and (5) achieving mutual understanding and perspective shifts. The findings underscore the critical role of open and ongoing communication among family and professional caregivers in building trust, addressing family caregivers' emotional and informational needs, and supporting them in navigating the shared caregiving roles of long-term dementia care. In addition, the findings point to the potential benefits of structured dialogues to promote family involvement and person-centered care in long-term dementia settings.

Indexed as

communicationconversationsdementia careDenmarkfamily caregiverslong-term residential care

Identifiers

PMID40291466
PMCPMC12033510

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.