ArticleAlzheimer's & dementia (New York, N. Y.)
Supporting dementia caregivers: The role of "lived experience" and public health collaboration.
Article in Alzheimer's & dementia (New York, N. Y.). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- Shared Experiences with Caregiving for Loved Ones Living with Dementia in an Adult Day Health and Resource Center: A Thematic Analysis.Geriatrics (Basel, Switzerland) · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Building a public health infrastructure to support family caregivers of people with dementia.The Gerontologist · 2025Article
- Supporting dementia caregivers: The role of "lived experience" and public health collaboration.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Developing effective resources to support dementia caregivers requires collaboration between public health officials and those with lived experience of caregiving. This perspective highlights why this collaboration is so crucial to elevating public health practice and describes the unique efforts of the BOLD Public Health Center of Excellence on Dementia Caregiving to foster this collaboration through its Lived Experience Advisory Groups (LEAG). The LEAGs convene people living with dementia, family caregivers, and public health officials to guide the development of resources that state, local, and tribal public health departments can use to support dementia caregivers in their communities. Through these interactions, public health strategies become more responsive to the real-life needs of caregivers and people living with dementia. This approach not only enhances caregiver support but also strengthens and aligns public health initiatives with the lived experiences of the populations they serve, fostering health equity and community engagement. This paper highlights key activities, outcomes, and future directions for integrating lived experience and public health perspectives into practice, offering a new and innovative model for other organizations seeking to improve support for dementia caregivers. Highlights: Public engagement enhances responsiveness and effectiveness of public health programs.LEAGs allow people with lived experience to help shape programs and facilitate collaboration with public health professionals.Local and state health agencies can improve engagement by implementing LEAGs.Increasing diversity of people with lived experience can improve outcomes for communities disproportionately impacted by dementia.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.