ArticleHospital pediatrics2025
Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation.
Article in Hospital pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
3 citing papers in PubMed.
- 'She's surrounded by everybody, but yet seen by nobody.' Parents' experiences and priorities for neonatal developmental follow-up care.BMJ paediatrics open · 2026Article
- Home-Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study.Child: care, health and development · 2026Article
- Associations of Environmental Modifications and Collaborative Care Environments with Positive Health in Families of Children with Medical Complexity: A Secondary Analysis.Nursing reports (Pavia, Italy) · 2026Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
objectiveCaregivers of children with medical complexity (CMC) modify their lives extensively to care for their children who have chronic conditions and often use medical devices. This study aimed to identify processes through which CMC caregivers adapt to meeting their child's needs and their own.
methodsWe conducted semistructured interviews with a group of CMC caregivers at a children's hospital in the Northeastern United States. We virtually interviewed caregivers to identify processes that enhanced their adaptation and coping. Interviews were recorded and transcribed. Following a grounded theory approach, we assigned process, emotion, and in vivo codes using MAXQDA qualitative data analysis software. We identified themes by conducting iterative group discussion. We processed themes through triangulation with our family advisory council. After reaching thematic saturation, we finalized themes through consensus with our study team, including a family partner.
resultsWe interviewed 14 caregivers (11 mothers, 3 fathers) from June to August 2021. Participants' children all had developmental delays and used medical devices (eg, feeding tube or tracheostomy). We identified 3 themes describing processes that helped these CMC caregivers adapt: (1) Finding acceptance and meaning in the caregiving experience; (2) organizing a practical system to care for their child; and (3) developing strategies to cope with stress.
conclusionThis study identified emotional, practical, and social processes that helped our group of CMC caregivers adapt to caregiving. Our findings indicate that interventions likely to enhance caregiver adaptation could involve supporting caregivers to find acceptance and meaning, create caregiving systems, and develop coping strategies.
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