Evidence map›Paper›PMID 40288771›Full record

ArticleAmerican journal on intellectual and developmental disabilities2025

Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability.

Maya Sabatello, Katherine E McDonald

Abstract read
In one paragraph

Article in American journal on intellectual and developmental disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Adults with Intellectual Disability and Consent to Precision Medicine Research: Using Supported Decision-Making to Facilitate First-Person Consent.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Maya SabatelloMaya Sabatello, Columbia University Irving Medical Center; and Katherine E. McDonald, Syracuse University.
Katherine E McDonaldMaya Sabatello, Columbia University Irving Medical Center; and Katherine E. McDonald, Syracuse University.

Funding

Disability, diversity and trust in precision medicine research: stakeholdersengagementR01HG010868 · NHGRI · NEW YORK STATE PSYCHIATRIC INSTITUTE DBA RESEARCH FOUNDATION FOR MENTAL HYGIENE, INC · PI SABATELLO, MAYA · 2020 to 2023
$3.5M
Including Adults with Intellectual Disability in Precision Medicine Research - Project ENGAGER01HD108701 · NICHD · SYRACUSE UNIVERSITY · PI Katherine Elizabeth McDonald, Maya Sabatello · 2022 to 2026
$3.3M
NHGRI NIH HHS R01 HG010868NICHD NIH HHS R01 HD108701
6 · The paper itself

Abstract

The inclusion of adults with intellectual disability (ID) in precision medicine research has scientific, public health, and social justice justifications. Yet there is an indication that this population is excluded from general (i.e., nondisability specific) health research, including precision medicine research. Adults with ID are thus unlikely to reap the benefits emerging from such scientific endeavors-today and in the future. In this commentary, we explore key issues in research ethics, including cohort diversity, the principle of justice, and consent, and discuss their ramifications for adults with ID and precision medicine researchers. We call for endorsing team science collaboration and community engagement to promote health equity for adults with ID and disability justice in precision medicine research.

Indexed as

Biomedical ResearchIntellectual DisabilityPrecision MedicineAdultHealth EquityHumansSocial Justiceconsentintellectual disabilityprecision medicine researchteam science

Identifiers

PMID40288771
PMCPMC12124407

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.