Evidence map›Paper›PMID 40283829›Full record

ArticleInternational journal of environmental research and public health2025

Caregiver Challenges and Opportunities for Accessing Early Hearing Detection and Intervention: A Narrative Inquiry from South Africa.

Katijah Khoza-Shangase, Ntsako Precious Maluleke

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Bridging the policy-practice gap: A call for urgent early intervention and early education South African policy reform for children who are deaf or hard-of-hearing.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2026
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4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

2 authors.

Katijah Khoza-ShangaseDepartment of Audiology, School of Human and Community Development, Faculty of Humanities, University of the Witwatersrand, Johannesburg 2050, South Africa.
Ntsako Precious MalulekeDepartment of Audiology, School of Human and Community Development, Faculty of Humanities, University of the Witwatersrand, Johannesburg 2050, South Africa.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEarly Hearing Detection and Intervention (EHDI) is essential for minimising the negative impact of childhood hearing loss on speech, language, and cognitive development. However, in low- and middle-income countries such as South Africa, various challenges hinder the implementation of EHDI services, leading to delayed diagnosis and intervention.

aimThis study explores caregivers' experiences with EHDI services, identifying key challenges and facilitators affecting access and timely intervention.

methodsA narrative inquiry approach was used as part of a broader research initiative on family-centred EHDI. Nine caregivers of children who are deaf or hard of hearing (DHH) were purposively sampled, and data were collected through semi-structured interviews.

resultsThematic analysis revealed systemic and structural challenges, logistical and financial constraints, and caregiver-related factors that hindered access to EHDI services. Key facilitators included caregiver knowledge and advocacy, family support services such as counselling and South African Sign Language training, and high-quality audiological and educational services.

conclusionsFindings emphasise the need for policy-driven reforms, including expanding newborn hearing screening programmes, improving financial assistance mechanisms, and increasing public awareness. Addressing these challenges and leveraging facilitators can help South Africa align with global EHDI benchmarks and improve outcomes for DHH children.

Indexed as

CaregiversHealth Services AccessibilityHearing LossAdultChildChild, PreschoolEarly DiagnosisFemaleHumansInfantMaleSouth Africacaregiver experiencesdeaf or hard of hearing (DHH)early hearing detection and interventionfamily-centred carepaediatric hearing lossSouth Africa

Identifiers

PMID40283829
PMCPMC12026790

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.