Evidence map›Paper›PMID 40283691›Full record

ArticleInternational journal of environmental research and public health2025

Advancing Health Equity Through Substance Use Medical Record Data Sharing: Insights from Healthcare Providers.

Mengyi Wei, Anita Murcko, Sai Prathyusha Nookala, Dharma Teja Bhattu, Sai Jahnavi Vemula, Darwyn Chern, Eric Lott, Mary Jo Whitfield, Nick Stavros, Deborah Ariosto and 1 more

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Mengyi WeiCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.ORCID 0000-0001-6294-2296
Anita MurckoCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.
Sai Prathyusha NookalaCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.
Dharma Teja BhattuCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.
Sai Jahnavi VemulaCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.
Darwyn ChernCopa Health, Mesa, AZ 85205, USA.
Eric LottCommunity Bridges Inc., Phoenix, AZ 85034, USA.
Mary Jo WhitfieldJewish Family and Children's Services, Phoenix, AZ 85037, USA.ORCID 0000-0002-6715-2098
Nick StavrosCommunity Medical Services, Phoenix, AZ 85021, USA.
Deborah AriostoCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.ORCID 0000-0002-8736-8240
Maria Adela GrandoCollege of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.

Funding

SHARES: Substance use HeAlth REcord SharingR01DA056984 · NIDA · ARIZONA STATE UNIVERSITY-TEMPE CAMPUS · PI MARIA ADELA GRANDO · 2023 to 2026
$2.6M
NIDA NIH HHS R01 DA056984NIDA NIH HHS R01 DA056984-06A1
6 · The paper itself

Abstract

backgroundBetter care is delivered when patients and providers share health information. Unfortunately, critical health data are often unavailable due to fragmentation within healthcare systems. Sensitive health information, like substance use disorder, is often sequestered in ways that do not meet patient data privacy choices and provider data access needs. This study explored healthcare providers' perspectives on barriers and facilitators to substance use data sharing and its impact on care.

methodsFocus groups were conducted with 31 healthcare providers from four treatment facilities. Discussions focused on privacy concerns, data-sharing workflows, and scenarios involving four Healthcare Effectiveness Data and Information Set (HEDIS) substance use disorder specific metrics. Open coding identified key concepts, and thematic analysis was employed to identify barriers and facilitators influencing data sharing and care outcomes.

resultsProviders identified five main barriers: patient reluctance to share (48%), data access challenges (42%), poor provider coordination (29%), incomplete health information (26%), and complexity of privacy regulations (23%). Key facilitators included patient understanding (26%), patient-provider relationship (16%), and reliability of health information systems (16%). DISCUSSION: This study sets the stage for understanding and addressing sensitive healthcare data access and privacy concerns through improved care coordination, systems interoperability, education, and policy reform.

Indexed as

Health EquityHealth PersonnelInformation DisseminationSubstance-Related DisordersAdultAttitude of Health PersonnelConfidentialityElectronic Health RecordsFemaleFocus GroupsHumansMaledata sharingHEDIS metricssubstance use disorder

Identifiers

PMID40283691
PMCPMC12026512

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.