ArticleBMC geriatrics2025
Proactive end-of-life conversations in residential care homes: a qualitative interview study exploring residents' and family members' experiences.
Article in BMC geriatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Person-centred care models for institutionalised older adults requiring palliative care: an integrative review.BMC geriatrics · 2026Pooled it
- Translation and pilot-testing of the ReSPECT (Recommended Summary Plan for Emergency Care and Treatment) form into Danish.Resuscitation plus · 2026Article
- Cocreation of a Digital Tool for Proactive End-of-Life Communication: Protocol for a Participatory Action Research Project.JMIR research protocols · 2026Article
- Tree of peaches: exploring what matters most at the end-of-life among healthy older adults in Taiwan: a qualitative study.BMC palliative care · 2026Article
- Investigating effect versus impact in a participatory action research project: Building end-of-life communication competence in residential care facilities for older people.Palliative care and social practice · 2026Article
- Talking about the hypothetical future: Serious illness communication for residents living with dementia in long-term care homes - An integrative review.Palliative care and social practice · 2026Review
- Voices that matter: Bereaved carers' perspectives of support and person-centred care in residential aged care homes.Palliative care and social practice · 2026Article
- Healthcare professionals' perspectives on implementing the Swedish palliative care guide in geriatrics - a qualitative study using small-group and individual interviews.BMC geriatrics · 2025Article
- Navigating preferences for a trouble-free transition: a grounded theory study among older residents in nursing homes.BMC public health · 2025Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDue to population aging, residential care homes are increasingly providing end-of-life care for residents with multiple chronic illnesses and cognitive decline. Proactive end-of-life communication, a component of Advance Care Planning, has been suggested as a means of providing high-quality care aligned with residents' preferences and supporting involved family members. Despite growing knowledge about the benefits of early communication concerning end-of-life care preferences, such conversations are still rare in the context of residential care homes, and little is known about how they are perceived by residents and family members. The aim of this study is to explore the outcomes experienced by residents and family members who have participated in proactive end-of-life conversations in residential care homes.
methodsThis qualitative study is embedded within a participatory action research project implementing proactive end-of-life conversations in five Swedish residential care homes, using a conversation tool. In this study we performed 18 interviews with eleven residents and eight family members after they had participated in staff initiated proactive end-of-life conversations. Data were analyzed using interpretive description.
resultsResidents and family members experienced several outcomes of proactive end-of-life conversations presented in three closely interconnected themes: (1) Enabling open communication, (2) Creating space for knowledge exchange, and (3) Contributing to feelings of confidence and relationship building.
conclusionsProactive end-of-life conversations generated several beneficial outcomes for residents and family members, including those with cognitive decline. The study demonstrated that the conversations may strengthen person-centered care and family support in this context. Based on these findings, proactive end-of-life conversations have the potential for use by residential care home staff.
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