Evidence map›Paper›PMID 40275808›Full record

ArticlePalliative & supportive care2025

Discriminatory health care reported by seriously ill LGBTQ+ persons and partners: Project Respect.

Cathy Berkman, Gary L Stein, William E Rosa, Kimberly D Acquaviva, David Godfrey, Imani Woody, Shail Maingi, Christian González-Rivera, Carey Candrian, Sean O'Mahony and 1 more

Abstract read
In one paragraph

Article in Palliative & supportive care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Cathy BerkmanGraduate School of Social Service, Fordham University, New York, NY, USA.ORCID https://orcid.org/0000-0002-1776-3931
Gary L SteinWurzweiler School of Social Work, Yeshiva University, New York, NY, USA.
William E RosaDepartment of Psychiatry & Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.ORCID https://orcid.org/0000-0002-0680-8911
Kimberly D AcquavivaSchool of Nursing, University of Virginia, Charlottesville, VA, USA.ORCID https://orcid.org/0000-0003-2906-7762
David GodfreyCommission on Law and Aging, American Bar Association, Washington, DC, USA (retired January 2024).ORCID https://orcid.org/0009-0009-9113-7363
Imani WoodyMary's House for Older Adults, Inc., Washington, DC, USA.
Shail MaingiDana-Farber Cancer Institute, South Weymouth, MA, USA.ORCID https://orcid.org/0000-0002-8230-4088
Christian González-RiveraBrookdale Center for Healthy Aging, Hunter College, CUNY, New York, NY, USA.ORCID https://orcid.org/0009-0003-7356-3998
Carey CandrianDepartment of Internal Medicine, University of Colorado School of Medicine, Aurora, CO, USA.ORCID https://orcid.org/0000-0002-2454-506X
Sean O'MahonyDivision of Palliative Medicine, University of Texas Medical Branch at Galveston, Galveston, TX, USA.
Noelle Marie JavierBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.ORCID https://orcid.org/0000-0003-3498-7627

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI SELWYN M VICKERS · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

objectivesRecent increases in homophobic and transphobic harassment, hate crimes, anti-lesbian, gay, bisexual, transgender, gender nonconforming, and queer (LGBTQ+) legislation, and discrimination in healthcare toward LGBTQ+ persons require urgent attention. This study describes seriously ill LGBTQ+ patients' and partners' experiences of discriminatory care delivered by healthcare providers.

methodsQualitative data from a mixed-methods study using an online survey were analyzed using a grounded theory approach. Seriously ill LGBTQ+ persons, their spouses/partners and widows were recruited from a wide range of organizations serving the LGBTQ+ community. Respondents were asked to describe instances where they felt they received poor care from a healthcare provider because they were LGBTQ+.

resultsSix main themes emerged: (1) disrespectful care; (2) inadequate care; (3) abusive care; (4) discriminatory care toward persons who identify as transgender; (5) discriminatory behaviors toward partners; and (6) intersectional discrimination. The findings provide evidence that some LGBTQ+ patients receive poor care at a vulnerable time in their lives. Transgender patients experience unique forms of discrimination that disregard or belittle their identity. SIGNIFICANCE OF

resultsProfessional associations, accrediting bodies, and healthcare organizations should set standards for nondiscriminatory, respectful, competent, safe and affirming care for LGBTQ+ patients. Healthcare organizations should implement mechanisms for identifying problems and ensuring nondiscrimination in services and employment; safety for patients and staff; strategies for outreach and marketing to the LGBTQ+ community, and ongoing staff training to ensure high quality care for LGBTQ+ patients, partners, families, and friends. Policy actions are needed to combat discrimination and disparities in healthcare, including passage of the Equality Act by Congress.

Indexed as

Healthcare DisparitiesSexual and Gender MinoritiesCross-Sectional StudiesFemaleHumansMaleRespectSocial DiscriminationSurveys and QuestionnairesdiscriminationLBGTQ+palliative careserious illness caretransgender

Identifiers

PMID40275808
PMCPMC12145487

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.