Evidence map›Paper›PMID 40275148›Full record

ArticleBMC pediatrics2025

Sociodemographic and clinical indicators associated with quality of life among parents of autistic children.

James Rufus John, Christa Lam-Cassettari, Cheryl Dissanayake, Valsamma Eapen

Abstract read
In one paragraph

Article in BMC pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

James Rufus John *School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia.
Christa Lam-Cassettari *School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia.
Cheryl DissanayakeOlga Tennison Autism Research Centre, La Trobe University, Victoria, Australia.
Valsamma EapenSchool of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia. v.eapen@unsw.edu.au.

Funding

Cooperative Research Centre for Living with Autism 1.023RU
6 · The paper itself

Abstract

backgroundEvidence suggests that parents/carers of autistic children have lower subjective physical and mental health which in turn can affect their overall quality of life (QoL). The aim of this study was to determine the relationship between the behavioural and emotional profile of autistic preschool children, parental stress, and an Autism (ASD) specific measure of the parental QoL using a sociodemographic lens.

methodsA secondary analysis of the data collected from parents of autistic children from six Autism Specific Early Learning and Care Centres (ASELCCs) across six states in Australia. The standardised Quality of Life in Autism scale (QoLA) scale was used as the primary outcome to ascertain the QoL of parents/carers. Primary exposure included child's autistic traits as well as cognitive, adaptive, and behavioural profile; parental stress; and key sociodemographic factors. Multivariable linear regression analyses were used to determine whether the sociodemographic factors and child's autistic traits were significantly associated with parental QoL whilst adjusting for key sociodemographic factors (for the latter).

resultsAmong a sample of 518 participants, findings of the regression analyses showed that sibling's ASD diagnosis and carer's disability status were negatively associated with parental QoL (Part A) whereas only sibling's ASD diagnosis was negatively associated with parental QoL (Part B). Additionally, higher parental stress levels, child's internalising, externalising, repetitive behaviours, and communication difficulties were negatively associated with both parental QoL subscales whereas greater adaptive functioning among autistic children was positively linked to better parental QoL.

conclusionFindings indicate that a child's autism specific traits as reported by parents have significant impacts on their QoL. Hence, targeted supports in these areas for families could be expected to have benefits not only for the child's outcomes but also for parental QoL.

Indexed as

Autistic DisorderParentsQuality of LifeStress, PsychologicalAdultAustraliaChildChild, PreschoolFemaleHumansMaleSociodemographic FactorsSurveys and QuestionnairesAutismParental stressQuality of lifeSociodemographic characteristics

Identifiers

PMID40275148
PMCPMC12020269

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.