ArticleDementia (London, England)2026
Post-diagnostic care pathways in dementia: Experiences and needs of family carers and considerations for interventions.
Article in Dementia (London, England), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
ObjectivesSocial and behavioural symptoms, prevalent across dementia syndromes, contribute to increased carer challenges and stress. However, post-diagnostic support for these symptoms remains limited. The Carers Way Ahead, initially developed for brain injury, is an online carer program addressing behavioural management of apathy, irritability, aggression, disinhibition, social difficulties, and self-care. This study aimed to explore the experiences and needs of family carers and co-design the adaptation of the Carers Way Ahead program for dementia.MethodTen family carers of people with dementia (4 frontotemporal dementia, 3 Alzheimer's disease, 3 Lewy body dementia, 1 Vascular dementia) in Australia participated in focus groups and interviews. Carers completed the Carers Way Ahead modules and provided insights into their experiences and feedback on the program. Transcripts were analysed using reflexive thematic analysis.FindingsThree themes were generated: (1)
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