Evidence map›Paper›PMID 40262954›Full record

ArticleBMJ open2025

Support needs and preferences for people with multiple sclerosis: a rapid review protocol.

Lee Cubis, Sharyn McDonald, Jacinta Douglas, Winkler Di, Rebecca Rothman, Fiona Carey, Jessica Arnold, Kimberly Skewes

Abstract read
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Lee CubisLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia lee.cubis@summerfoundation.org.au.ORCID http://orcid.org/0009-0002-8896-9117
Sharyn McDonaldSummer Foundation Ltd, Melbourne, Victoria, Australia.
Jacinta DouglasLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
Winkler DiLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
Rebecca RothmanLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
Fiona CareyLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
Jessica ArnoldLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
Kimberly SkewesLiving with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.ORCID http://orcid.org/0009-0004-0155-4985

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPeople with multiple sclerosis (MS) live with a progressive condition that can result in complex disability support needs. Consequently, they may require specialised care and assistive technology to maintain independence at home. It is essential to develop an understanding of the support needs and preferences of people with MS to maintain independence and enhance their quality of life. METHODS AND ANALYSIS: The principles of a systematic review framework are incorporated into our rapid review. As such, a reference group was recruited at the project's outset, shaping the research question and study design, followed by developing a thorough listing of search terms. We then adapted the methodology in line with recommendations for conducting a rapid review whereby only three databases were included: MEDLINE (Ovid), Embase (Ovid) and PsycINFO (Ovid). Data from qualitative and mixed-method studies will be extracted, coded and classified using content analysis. In addition to including peer-reviewed articles, we will examine grey literature sourced from MS-specific organisations and research centres. Grey literature content that has the potential to inform practice will be extracted and categorised. Collectively, themes will be identified from the analysed literature, with a subsequent evaluation conducted by our reference group. The inclusion criteria assert that all documentation must be published in English from 2010 onwards, specifically focusing on people with MS. ETHICS AND DISSEMINATION: This rapid review does not require ethics approval. Findings will be circulated to our reference group and then published in peer-reviewed journals or presented at conferences.

Indexed as

Health Services Needs and DemandMultiple SclerosisPatient PreferenceHumansQuality of LifeResearch DesignSystematic Reviews as TopicHealth ServicesMultiple sclerosisPatient Participation

Identifiers

PMID40262954
PMCPMC12015702

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.