Evidence map›Paper›PMID 40261485›Full record

ArticleJournal of racial and ethnic health disparities2026

Race and Ethnicity Data in the Electronic Health Records: New Insights Through Comparison with American Community Survey Microdata.

Rocio Rosa-Lebron, Aubrey Limburg, Timothy S Carey, Victoria M Udalova, Barbara Entwisle

Abstract readComparative Study
In one paragraph

Article in Journal of racial and ethnic health disparities, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Rocio Rosa-LebronDepartment of Sociology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Aubrey LimburgU.S. Census Bureau, Washington, DC, USA.
Timothy S CareySchool of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Victoria M UdalovaU.S. Census Bureau, Washington, DC, USA.
Barbara EntwisleDepartment of Sociology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA. entwisle@unc.edu.ORCID 0000-0003-0131-1022

Funding

Re-Entry Supplement: Investigation of Oral Microbial Enzymes for the Detection and Treatment of Periodontal DiseaseUL1TR002489 · NCATS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BUSE, JOHN BERNARD, SHAHEEN, NICHOLAS J · 2018 to 2022
$48.6M
North Carolina Translational and Clinical Sciences Institute (NC TraCS)UM1TR004406 · NCATS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI NICHOLAS J SHAHEEN · 2023 to 2026
$37.5M
Research Services CoreP2CHD050924 · NICHD · UNIV OF NORTH CAROLINA CHAPEL HILL · PI KAREN B GUZZO · 2015 to 2026
$9.6M
NCATS NIH HHS UL1 TR002489NCATS NIH HHS UM1 TR004406NICHD NIH HHS P2C HD050924North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill UL1TR002489
6 · The paper itself

Abstract

The collection of race and ethnicity information varies across data sources which impacts our ability to conduct high quality research focused on population health, generally, and racial and ethnic disparities in health, specifically. This research examines concordance in racial/ethnic identification between two sources by linking individual-level electronic health record (EHR) data (2017-2019) from a public integrated health delivery system in North Carolina to American Community Survey (ACS) microdata (2001-2017). We find that concordance is high for individuals who identify as non-Hispanic Black, non-Hispanic White, and Hispanic but considerably lower for other non-White, non-Hispanic individuals, particularly for American Indian and Alaska Native patients. Given their detailed health information, EHR data have the potential to support research focused on population health and racial and ethnic disparities. Results from this study provide information regarding data quality and future applications of this work to expand population research.

Indexed as

Electronic Health RecordsEthnicityRacial GroupsData AccuracyHumansNorth CarolinaSurveys and QuestionnairesUnited StatesWhiteData qualityElectronic health recordsEthnicityMissing dataRace

Identifiers

PMID40261485
PMCPMC12771273

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.