Evidence map›Paper›PMID 40259306›Full record

ArticleBMC health services research2025

Co-design and prototype development of MedManageSCI: a medication self-management toolkit for adults with spinal cord injury/dysfunction.

Lauren Cadel, Rasha El-Kotob, Sander L Hitzig, Lisa M McCarthy, Shoshana Hahn-Goldberg, Tanya L Packer, Tejal Patel, Stephanie R Cimino, Aisha K Lofters, Chester H Ho and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC health services research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Lauren CadelLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-6925-8163
Rasha El-KotobLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-8219-810X
Sander L HitzigSt. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-9139-9250
Lisa M McCarthyLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0001-9087-1077
Shoshana Hahn-GoldbergLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-7016-5295
Tanya L PackerSchools of Occupational Therapy and Health Administration, Dalhousie University, Halifax, NS, Canada.ORCID http://orcid.org/0000-0003-4831-7691
Tejal PatelSchool of Pharmacy, University of Waterloo, Kitchener, ON, Canada.
Stephanie R CiminoLawson Research Institute, St. Joseph's Healthcare, London, ON, Canada.ORCID http://orcid.org/0000-0002-4744-5520
Aisha K LoftersDalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0002-7322-0894
Chester H HoDivision of Physical Medicine & Rehabilitation, Department of Medicine, University of Alberta, Edmonton, AB, Canada.ORCID http://orcid.org/0000-0002-4238-5506
Maliha AsifLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.ORCID http://orcid.org/0000-0003-3740-1417
Sara J T GuilcherLeslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada. sara.guilcher@utoronto.ca.ORCID https://orcid.org/0000-0002-9552-9139

Funding

Canadian Institutes of Health Research Canada Graduate Scholarship 493705Craig H. Neilsen Foundation 855615
6 · The paper itself

Abstract

backgroundMedications are among the most common health interventions, with certain populations, such as individuals with spinal cord injury/dysfunction (SCI/D), commonly prescribed multiple medications. Consequently, adults with SCI/D often engage in activities related to medication self-management, but there are few comprehensive resources for this population. The objective of this study was to co-design the prototype of a toolkit to support medication self-management among adults with SCI/D.

methodsWe conducted a participatory multi-methods study, using the Good Things Foundation Pathfinder Model as a guide for the co-design process. Participants included adults with SCI/D, caregivers, and healthcare providers. Following the model's three stages, we: (1) understood and defined the problem by conducting a scoping review, concept mapping study, and working group sessions; (2) created a prototype of the toolkit through working group sessions and website development meetings; and (3) tested the prototype through working group sessions.

resultsThe working group consisted of 19 individuals, including 9 adults with SCI/D, 1 caregiver, and 9 healthcare providers. In Stage 1, we identified the need for a comprehensive medication self-management resource through a scoping review, brainstormed content and delivery methods, and thematized and prioritized the content into eight categories through a concept mapping study. The concept mapping study included 44 participants, including 21 adults with SCI/D, 11 caregivers, and 12 healthcare providers. In Stage 2, feedback on the content mapped onto five categories: first impressions, message and purpose, visual elements, layout and flow, and graphics. The name, MedManageSCI, was selected by the working group. Through an iterative process with the website development company, an online version of the toolkit prototype was created ( www.medmanagesci.ca ). In Stage 3, participants provided recommendations to improve the website's functionality and navigation.

conclusionsThe co-design of the MedManageSCI prototype is a significant step toward addressing the medication self-management needs of adults with SCI/D. The implications of this work extend beyond SCI/D, highlighting the importance of tailored digital health resources for populations with complex healthcare needs. Future work is needed to refine the content, assess the feasibility, acceptability, and appropriateness of the toolkit, and examine outcomes related to medication self-management.

Indexed as

Self-ManagementSpinal Cord InjuriesAdultCaregiversFemaleHumansMaleMiddle AgedChronic conditionCo-designDigital health interventionMedication adherenceMedication self-managementParticipatory researchSelf-careSelf-managementSpinal cord dysfunctionSpinal cord injuryToolkitUser-centered innovation

Identifiers

PMID40259306
PMCPMC12013044

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.