Evidence map›Paper›PMID 40259109›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025

Understanding experiences of optimal survivorship care: findings from a population-based study of cancer survivors.

Victoria White, Karla Gough, Eli Ristevski, Karolina Lisy, Kate Webber, Jon Emery, Peter Gibbs, Maarten IJzerman, Nikki Davis, Michael Jefford

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Victoria WhiteSchool of Psychology, Faculty of Health, Deakin University, Burwood, VIC, Australia. vicki.white@deakin.edu.au.ORCID http://orcid.org/0000-0001-6619-8484
Karla GoughDepartment of Health Services Research, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.
Eli RistevskiSchool of Rural Health, Monash University, Warragul, VIC, Australia.
Karolina LisyDepartment of Health Services Research, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.
Kate WebberSchool of Clinical Sciences, Monash University, Clayton, VIC, Australia.
Jon EmeryDepartment of General Practice and Centre for Cancer Research, University of Melbourne, Melbourne, Australia, VIC.
Peter GibbsDepartment of Medical Oncology, Western Health, St. Albans, VIC, Australia.
Maarten IJzermanSir Peter MacCallum Department of Oncology, The University of Melbourne, Melbourne, VIC, Australia.
Nikki DavisPrimary Care Cancer Collaborative Clinical Trials Group, Victorian Comprehensive Cancer Centre, Melbourne, VIC, Australia.
Michael JeffordDepartment of Health Services Research, Peter MacCallum Cancer Centre, Melbourne, VIC, Australia.

Funding

National Health and Medical Research Council APP1195302Victorian Cancer Agency, Australia HSR19001
6 · The paper itself

Abstract

backgroundMultiple frameworks describing optimal cancer survivorship care recommend the development of systems to monitor delivery of quality care. This study reports the experiences of cancer survivorship care in Australia and examines associations with patient-level sociodemographic and clinical characteristics.

methodsPeople aged ≥ 16 years, with any cancer receiving cancer care in a Victorian public hospital in 2018, were invited to complete a survey assessing care experiences. Seven items assessed follow-up care experiences with optimal care indicated by the response: 'Yes, definitely received', and sub-optimal care by responses 'Yes, I think so', 'No', and 'Not sure'. A composite score was derived with optimal care defined as positive experiences on the majority of items. Sociodemographic and clinical factors associated with optimal care were examined using multivariable logistic regression.

resultsOf the 4998 (47% response rate) respondents, 3555 were receiving follow-up care. The item most respondents indicated receiving optimal care was 'receiving information about schedule of tests/check-ups' (73%), with optimal care least likely to be reported for the item 'receiving information about new symptoms needing investigation' (44%). Based on our composite measure, only 40% had optimal survivorship care overall. Those more likely to report optimal survivorship care were male, from lower socioeconomic advantage areas, reported excellent health, diagnosed with breast, prostate, lung or a haematological cancer, and diagnosed less recently.

conclusionsLarge numbers of Australian cancer survivors report sub-optimal survivorship care, with experiences varying by some sociodemographic and clinical characteristics. Understanding reasons for differences can provide insight into strategies to ameliorate variations.

Indexed as

Cancer SurvivorsNeoplasmsQuality of Health CareSurvivorshipAdolescentAdultAgedAged, 80 and overAustraliaFemaleHumansMaleMiddle AgedSurveys and QuestionnairesVictoriaYoung AdultCancerCancer survivorsDisparitiesExperiencePatient-reported outcomesQuality of lifeSatisfaction

Identifiers

PMID40259109
PMCPMC12011894

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.