Evidence map›Paper›PMID 40256445›Full record

ArticleHRB open research2024

Development and evaluation of a stroke research Public Patient Involvement Panel.

Siobhán O'Reilly, Aoife Whiston, Aine Cronin, Eva Corbett, Amy O'Mahony, Molly X Manning, Pauline Boland, Katie Robinson, Rose Galvin, Joanna M Allardyce and 10 more

Abstract read
In one paragraph

Article in HRB open research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Siobhán O'ReillySchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-3727-1483
Aoife WhistonSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-0300-5910
Aine CroninAgeing Research Centre, Health Research Institute, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-6339-5674
Eva CorbettSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.
Amy O'MahonySchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0009-0009-2106-1359
Molly X ManningSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-2798-2695
Pauline BolandSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0003-0218-327X
Katie RobinsonSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0003-1008-9857
Rose GalvinSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-8171-224X
Joanna M AllardyceSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.
Mike ButlerUniversity of Limerick, Limerick, County Limerick, Ireland.
Jim BradleyUniversity of Limerick, Limerick, County Limerick, Ireland.
Jon SalsbergHealth Research Institute, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0003-2010-3691
Margaret O'ConnorUniversity Hospital Limerick, Dooradoyle, County Limerick, Ireland.ORCID https://orcid.org/0000-0001-9984-9204
Patricia PondUniversity Hospital Limerick, Dooradoyle, County Limerick, Ireland.
Eva MurphyUniversity Hospital Limerick, Dooradoyle, County Limerick, Ireland.
Liam G GlynnHealth Research Institute, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-6153-9363
Nora CunninghamUniversity Hospital Limerick, Dooradoyle, County Limerick, Ireland.
Edel HennessyUniversity Hospital Limerick, Dooradoyle, County Limerick, Ireland.
Sara HayesSchool of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.ORCID https://orcid.org/0000-0002-7128-2194

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Public and patient involvement (PPI) is important in stroke research to ensure that research conducted reflects the priorities and needs of people after stroke. Several factors have been found to affect PPI, including location of the research and time requirements for participation. The incidence of stroke is rising, and can result in symptoms including fatigue, depression, and physical/cognitive impairments. Aims: 1) Describe the development of a PPI panelpanel and a healthcare professional panelpanel for stroke rehabilitation research and 2) to explore the perspectives of the members of the PPI groups on being involved in the research process. Methods: A stakeholder panel consisting of up to 20 people with stroke, members of the public and healthcare professionals will be formed. A pragmatic purposive sampling technique using snowball sampling will be used to recruit members. The PPI panel will meet four times and will be supported by the guidelines developed from the INVOLVE framework. The PPI panel will be involved as co-researchers in the conceptualisation of future stroke rehabilitation research, the delivery of such studies, the analysis and dissemination of findings. Following the development of the panel, we will conduct a semi-structured focus groups to collect qualitative data, examining the perspectives of members. Data will be transcribed and analysed using Braun and Clarke's Reflexive Thematic Analysis. This will result in a set of themes and subthemes describing participants' opinions and experience of being on a PPI panel in stroke rehabilitation research. Conclusions: PPI is an essential part of research in stroke. Stakeholders can provide key insights into the research processes. The results of this qualitative study will provide insight into the barriers and enablers of their participation in PPI in stroke rehabilitation research.

Indexed as

PPIPublic and patient involvementstakeholderstrokestroke research

Identifiers

PMID40256445
PMCPMC12008718

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.