ArticlePatient preference and adherence2025
Factors Influencing Decision-Making Preferences Among Patients with Inflammatory Bowel Disease: A Cross-Sectional Study in China.
Article in Patient preference and adherence, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Patient Participation in Decision-Making During Nursing Care: A Relational Autonomy Perspective.Journal of advanced nursing · 2026Article
- Exploring Patient Involvement in Treatment Decision-Making for Diabetic Retinopathy: A COM-B Model-Based Cross-Sectional Survey.Patient preference and adherence · 2025Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Purpose: This study aimed to evaluate the current status and the discrepancies between anticipated and actual involvement in decision-making roles among patients with inflammatory bowel disease, as well as to explore the factors that influenced actual decision-making participation. Patients and Methods: From December 2023 to June 2024, a convenience sampling method was employed to recruit patients with inflammatory bowel disease from the Department of Gastroenterology at a tertiary hospital in Anhui, China. A general information questionnaire, the Control Preference Scale, the All Aspects of Health Literacy Scale, and the Decision Dilemma Scale were utilized for investigation and analysis. Results: A total of 274 patients with inflammatory bowel disease were recruited.The distribution of patients' expected participation in decision-making preferences was as follows: 68 cases (24.82%) actively, 143 cases (52.19%) shared, and 63 cases (22.99%) passively. Actual participation in decision-making roles was as follows: 39 cases (14.23%) actively, 147 cases (53.65%) shared, and 88 cases (32.12%) passively. Expected participation in decision-making preferences and actual participation in decision-making roles were moderately consistent, with a compliance rate of 69.34% and a kappa value of 0.498 (p < 0.001). The overall health literacy score was (24.34±5.47), and the decision-making dilemma score was (25.22±15.20). Factors affecting actual participation in decision-making roles included marital status, education level, Average monthly household income, current work status, type of disease diagnosis, current treatment modalities, and health literacy. Conclusion: Patients with inflammatory bowel disease have high expectations and a genuine willingness to participate in decision-making, along with overall health literacy. However, decision-making dilemmas persist, and a discrepancy exists between expectations and actual decision-making roles. Healthcare professionals should prioritize assessing patients' individual circumstances and decision-making needs while actively engaging them in the decision-making process. Patient engagement and satisfaction can be enhanced by providing targeted and personalized strategies.
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