ArticleJournal of autism and developmental disorders2026
Aligning Perspectives: Autism Identity, Independence, Participation, and Quality of Life in Autistic Adolescents Through Self and Parental Reports.
Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed.
- Assessing AI-Based Large Language Models (ChatGPT, Google Gemini, and DeepSeek) for Common Parent Questions about Autism: Acceptability, Readability, and Accuracy.The Psychiatric quarterly · 2025Article
- Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics.Autism research : official journal of the International Society for Autism Research · 2025Article
- Illness identity perception of adolescents with anxiety and mood disorders and its association with social functioning.Frontiers in public health · 2025Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This study examines the alignment between self-reports and parental reports on adolescents' autism identity, functional autonomy, social participation, and quality of life (QoL), providing insights into the relationships between these factors. Thirty dyads comprising adolescents aged 13 to 18 years and one of their parents participated in the study. Participants completed the Autism Identity Questionnaire, Daily Routine and Autonomy questionnaire, Child and Adolescent Scale of Participation-Youth, and the Pediatric Quality of Life Inventory. The findings indicated moderate agreement between self-reports and parental reports regarding autism identity, functional autonomy, and QoL. Fair agreement was found regarding social participation. Adolescents who reported higher levels of acceptance regarding their autism identity demonstrated greater autonomy and participation, which correlated with a higher QoL. Conversely, those with higher engulfment scores (feeling overwhelmed by the diagnosis) exhibited lower levels of independence, social participation, and emotional and social QoL. These findings suggest that fostering a positive autism identity may enhance autonomy and social participation while addressing feelings of engulfment could improve emotional and social outcomes.
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Registered trials
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