ArticleDevelopmental medicine and child neurology2025
A core outcome set to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy.
Article in Developmental medicine and child neurology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Test-retest reliability and measurement error of the pain interference questionnaire for cerebral palsy and the fear of pain questionnaire adapted for cerebral palsy.Journal of patient-reported outcomes · 2026Article
- Vulnerability and Pediatric Pain.Paediatric & neonatal pain · 2026Article
- A core outcome set to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy.Developmental medicine and child neurology · 2025Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo: (1) develop a core outcome set (COS) to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy (CP) with varying communication, cognitive, and functional abilities; (2) categorize the assessment tools according to reporting method or observer-reported outcome measures; and (3) categorize the content of tools in the COS according to the International Classification of Functioning, Disability and Health (ICF).
methodA two-stage multi-stakeholder consensus process was used: stage 1 consisted of a workshop where 42 valid and reliable assessment tools were presented to 12 clinicians and six individuals with lived experience of CP to exclude tools considered not feasible; stage 2 consisted of a 2-round Delphi survey of 85 clinicians, researchers, and individuals with lived experience of CP to gain consensus on which tools to include. Included tools were mapped to the framework of the ICF.
resultsTwenty of 29 chronic pain assessment tools considered feasible reached 75% or greater consensus for inclusion in the COS. The tools were categorized according to reporting type: patient-reported or observer-reported; and their purpose: to identify the presence of chronic pain, to assess pain interference on activities of daily living, or to assess the impact on emotional functioning.
interpretationThe developed COS guided the assessment of pain interference and impact on emotional functioning for children and young people with CP with a range of communication and cognitive abilities; the COS can be used to facilitate patient-centred care.
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