Evidence map›Paper›PMID 40238522›Full record

ArticleInternational journal of environmental research and public health2025

Parent-Reported Health-Related Quality of Life (HRQoL) of NICU Graduates in Their First Year: A Prospective Cohort Study.

Parel Heuvink, Nienke H van Dokkum, Koenraad N J A Van Braeckel, Helene A Bouma, Karianne E Kraft, Arend F Bos, Paul F M Krabbe

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In one paragraph

Article in International journal of environmental research and public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Parel HeuvinkDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.
Nienke H van DokkumDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.ORCID 0000-0003-2706-0372
Koenraad N J A Van BraeckelDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.
Helene A BoumaDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.ORCID 0000-0002-5962-7604
Karianne E KraftDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.
Arend F BosDivision of Neonatology, Department of Pediatrics, Beatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.ORCID 0000-0002-6103-6125
Paul F M KrabbeDepartment of Epidemiology, University Medical Center Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30.001, 9713 GZ Groningen, The Netherlands.ORCID 0000-0001-6042-1243

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Health-related quality of life (HRQoL) in neonatal intensive care unit (NICU) graduates during the first year after birth is unknown. Gaining more insight into parental perspectives on HRQoL in this group may aid healthcare professionals in follow-up care. We aimed to assess HRQoL of NICU graduates during their first year after birth from a parental perspective using the newly developed Infant Quality of Life Instrument mobile application questionnaire. This was a prospective cohort study including NICU graduates of all gestational ages (N = 108). We assessed which of seven HRQoL domains, Sleeping, Feeding, Breathing, Stooling, Mood, Skin, and Interaction, proved most problematic during infants' first year after birth and whether there were differences between the gestational age groups. The three domains proving most problematic from the parents' perspective were Feeding (ranging from 14% to 43%), Sleeping (ranging from 23% to 42%), and Interaction (decreasing from 86% to 19%). The trajectories of extremely preterm infants were more frequently problematic than those of other groups. Healthcare professionals should focus on these most problematic domains in their follow-up care.

Indexed as

Intensive Care Units, NeonatalParentsQuality of LifeAdultFemaleHumansInfantInfant, NewbornMaleProspective StudiesSurveys and Questionnaireshealth-related quality of lifeNICU graduatesparental perspective

Identifiers

PMID40238522
PMCPMC11941789

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.