ArticleBMJ paediatrics open2025
How young people experienced long covid services: a qualitative analysis.
Article in BMJ paediatrics open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
3 citing papers in PubMed.
- "It's sad, and I want to go back to how things were before": a qualitative study of young people's experiences of living with long COVID.BMJ paediatrics open · 2026Article
- Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
ΒACKGROUND: After the COVID-19 pandemic, children and young people (CYP) with long covid were managed in specialist clinics. However, there is limited research on how CYP who accessed long covid clinics experienced them.
methodsWe aimed to evaluate how acceptable paediatric long covid services were to patients. Semi-structured qualitative interviews with 13 paediatric patients were used to understand the experiences of patients with long covid. Recruited participants were aged 11-17 years old, had a long covid diagnosis, and accessed specialist paediatric service in the Southwest of England from June 2022 to September 2023. Clinicians working in the long covid clinics identified CYP who were eligible and asked their consent to be contacted by a member of the study team. All participants who consented to be involved in the study were sampled. Thematic analysis was used to extract codes and themes from the data.
resultsFour themes were reported. Accessing specialist clinics helped CYP to feel validated; they appreciated consulting with clinicians who were knowledgeable about long covid and empathetic. CYP found comfort in knowing other CYP were experiencing long covid. CYP wanted to be proactive in their long covid management, appreciating regular appointments and the opportunity to learn about their condition. CYP desired normality, and therefore sought flexible appointment times, online appointments and reasonable adjustments. CYP found the waiting times to access long covid services were too long.
conclusionsOur results stress the importance to CYP of several features of the care received in the specialist clinics. These relate to the experiences of CYP with long covid but potentially extend to CYP with other conditions, particularly long-term and/or poorly understood conditions. The results support creating community-based support groups for CYP with long-term medical conditions, providing online flexible appointments, offering early reasonable adjustments for school and providing quicker access to specialist clinics.
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