ArticleFrontiers in pediatrics2025
Experiences among parents caring for children with juvenile idiopathic arthritis at a tertiary referral hospital in Kenya.
Article in Frontiers in pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
3 citing papers in PubMed.
- The challenges and opportunities for equitable global access to medications for paediatric rheumatology in low-to middle-income countries: a review on behalf of the Paediatric Global Task Force for Musculoskeletal Health.Arthritis research & therapy · 2026Review
- Parents' Satisfaction with Juvenile Idiopathic Arthritis Care: Findings from a Cohort of Italian Children Using the JAMAR Questionnaire.Medicina (Kaunas, Lithuania) · 2025Article
- The impact of chronic pain on adolescents and their families: A qualitative investigation of parental perspectives.Canadian journal of pain = Revue canadienne de la douleur · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in childhood. Despite the availability of effective treatment strategies such as disease-modifying antirheumatic drugs (DMARDs), JIA is reported to have a negative impact on the quality of life of the patients and their caregivers. Ascertaining the perceptions of the parents will help facilitate more effective management strategies and improve outcomes for these patients. This study aimed to ascertain parental experiences and perceptions of caring for children with juvenile idiopathic arthritis (JIA). Methods: This was a single-center facility-based qualitative study. An in-depth interview guide was used to collect data from parents ( Results: A total of 12 parents participated in the study: 9 mothers and 3 fathers aged from 35 to 47 years. All parents were from middle- and low-income families. The study revealed parental experiences and perceptions in eight key domains: medical-related challenges, emotional aspects, coping mechanisms to deal with emotional burden, financial challenges, social challenges, healthcare personnel-associated experiences, disruption of work, and absenteeism by parents. Parents faced challenges in looking for resources and support to cope with the difficult moments of caring for their sick children. These challenges not only affected the parents but also affected the relationships in their entire families, including siblings, relatives, and their relationships among friends. Conclusion: The findings in this study highlight the challenges experienced by parents caring for children with JIA. Health workers need to be vigilant to the plight guardians go through and create support avenues to help them navigate the challenges they experience. There is a need for proper assessment of the physical and psychosocial well-being of parents and their families so that appropriate resources can be provided in promoting holistic patient-centered care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.