Evidence map›Paper›PMID 40229605›Full record

ArticleJournal of general internal medicine2025

"It's Usually Not Dementia That's the Focus": Barriers and Facilitators of Dementia Care in Primary Care.

Emmanuel Angomas, Marcela D Blinka, Elizabeth Kelly, Obehiaghe Oniha, Maura McGuire, Jessica L Colburn, Joseph J Gallo, Jennifer L Wolff, Cynthia M Boyd, Quincy M Samus and 1 more

Abstract read
In one paragraph

Article in Journal of general internal medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Documented follow-up to memory concerns reported at the Medicare Annual Wellness Visit.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Emmanuel AngomasDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Marcela D BlinkaDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Elizabeth KellyDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Obehiaghe OnihaDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Maura McGuireDepartment of Medicine, Division of General Internal Medicine, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Jessica L ColburnDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Joseph J GalloJohns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
Jennifer L WolffJohns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA.
Cynthia M BoydDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Quincy M SamusJohns Hopkins University School of Nursing, Baltimore, MD, USA.
Halima AmjadDepartment of Medicine, Division of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD, USA. Hamjad1@jhmi.edu.ORCID 0000-0002-0642-6956

Funding

Research Education ComponentP30AG066507 · NIA · JOHNS HOPKINS UNIVERSITY · PI Jinchong Xu · 2020 to 2026
$29.3M
Consumer Health Information Technology to Engage and Support ADRD Caregivers: Research Program to Address ADRD Implementation MIlestone 13.IR35AG072310 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2021 to 2025
$4.3M
Summer Research Training in Aging for Medical StudentsT35AG026758 · NIA · JOHNS HOPKINS UNIVERSITY · PI Stephanie Nothelle, Sevil Yasar · 2005 to 2026
$1.9M
Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
NIA NIH HHS AG064036NIA NIH HHS AG072310NIA NIH HHS K23 AG064036NIA NIH HHS L30 AG057072NIA NIH HHS P30 AG066507NIA NIH HHS R35 AG072310NIA NIH HHS T35 AG026758
6 · The paper itself

Abstract

backgroundPrimary care provides most dementia care, yet providing high-quality dementia care within this setting remains a challenge. Medicare and health system initiatives create opportunities to improve quality of dementia care.

objectiveTo evaluate barriers and facilitators of high-quality dementia care in primary care with a secondary focus on interdisciplinary team-based primary care and health information technology.

designQualitative study using semi-structured interviews from July 2021 to January 2023.

participantsFifteen persons living with dementia (PLWD) and/or their 13 family caregivers, five primary care providers (PCPs), and 23 interdisciplinary primary care staff (nurses, medical assistants, care managers, social workers, pharmacists, practice administrators) across practices in a single health system. APPROACH: We used qualitative content analysis to identify barriers and facilitators to dementia care within a framework of factors affecting whether clinicians follow clinical practice guidelines and how interdisciplinary teams and technology may support dementia care. KEY

resultsAcross all participants, there was limited knowledge of care practices and domains that constitute high-quality dementia care. Though PCP, staff, and caregiver attitudes were affected by their own prioritization of other medical conditions in primary care, all groups appreciated the importance of dementia care, and PCPs and staff were already addressing many relevant care domains. Barriers driving behavior were numerous and included time constraints, staffing challenges, and resource limitations in addition to patient or family-level factors. Interdisciplinary team-based care, telehealth, and patient portals can facilitate dementia care from PCP, staff, PLWD, and caregiver perspectives but interdisciplinary teams in particular are not yet used optimally.

conclusionsPCPs, interdisciplinary staff, PLWD, and caregivers identify numerous barriers to high-quality dementia care. Implementing dementia care and primary care initiatives, optimizing interdisciplinary team functioning, patient portal and telehealth use for dementia care, PCP/staff dementia training, and addressing well-known primary care challenges could improve dementia care in select settings.

Indexed as

DementiaPrimary Health CareAgedAged, 80 and overAttitude of Health PersonnelCaregiversFemaleHumansMaleMiddle AgedPatient Care TeamQualitative ResearchDementiaDementia carePrimary care

Identifiers

PMID40229605
PMCPMC12343379

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.