Evidence map›Paper›PMID 40226374›Full record

ArticleClinical kidney journal2025

Patient and caregiver perspectives on mental health in children and adolescents with chronic kidney disease.

Luca G Torrisi, Anita van Zwieten, Chandana Guha, Marianne Kerr, Amanda Sluiter, Anastasia Hughes, Jonathan C Craig, Aditi Sinha, Allison Dart, Allison A Eddy and 5 more

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Article in Clinical kidney journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Luca G TorrisiSydney School of Public Health, The University of Sydney, Sydney, Australia.
Anita van ZwietenSydney School of Public Health, The University of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0003-4564-5825
Chandana GuhaSydney School of Public Health, The University of Sydney, Sydney, Australia.
Marianne KerrCentre for Kidney Research, The Children's Hospital at Westmead, Westmead, Australia.
Amanda SluiterSydney School of Public Health, The University of Sydney, Sydney, Australia.
Anastasia HughesSydney School of Public Health, The University of Sydney, Sydney, Australia.ORCID https://orcid.org/0009-0003-5512-0333
Jonathan C CraigCollege of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Aditi SinhaDepartment of Pediatrics, Division of Nephrology, All India Institute of Medical Sciences, New Delhi, India.
Allison DartDepartment of Pediatrics and Child Health, The Children's Hospital Research Institute of Manitoba, University of Manitoba, Winnipeg, MB, Canada.ORCID https://orcid.org/0000-0002-4718-9408
Allison A EddyDepartment of Pediatrics, University of British Columbia, and BC Children's Hospital Research Institute, Vancouver, BC, Canada.
Hui-Kim YapDepartment of Pediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
Stephen I AlexanderCentre for Kidney Research, The Children's Hospital at Westmead, Westmead, Australia.
Susan L FurthDepartment of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
Joshua KausmanDepartment of Nephrology and Murdoch Children's Research Institute, Royal Children's Hospital, Melbourne, Victoria, Australia.
Allison JaureSydney School of Public Health, The University of Sydney, Sydney, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Rationale & Objective: Children and adolescents with chronic kidney disease (CKD) are at risk of depression and other mental health conditions, which can impair quality of life, the capacity for self-management and adherence to treatment, and overall health. This study aimed to describe the perspectives of patients and caregivers on mental health in children and adolescents across all stages of CKD. Study Design: Qualitative study. Settings & Participants: A secondary analysis of a consensus, multi-stage and inclusive process designed to establish core outcomes for children with CKD [Standardised Outcomes in Nephrology-Children and Adolescents (SONG-Kids)]. A total of 120 children and 250 caregivers, from 53 countries, who participated in 16 focus groups, two consensus workshops and an international Delphi survey were eligible for inclusion. Analytical Approach: We conducted a secondary thematic analysis of all qualitative data from the (SONG-Kids). Results: We identified five themes: struggling with a frail and sick identity (demoralized by a restricted lifestyle, shattered body image, victim of bullying, and descending into loneliness and isolation), worried by ongoing uncertainty about health (confronting own mortality and apprehension awaiting medical results), disappointed by narrowed vocational opportunities (unable to reach academic potential and thwarted career goals), distressed by medical trauma (traumatized by invasive procedures, and unrelenting demands of medication and treatment) and despair without adequate psychological support. Limitations: The transferability of the findings may be limited as the study was conducted in English. Conclusion: Children and adolescents with CKD may feel vulnerable, experience fear and anxiety about their prognosis and health, harbour a sense of failure with disappointment, and experience medical trauma. Improving ways to address fears and uncertainty about health, disruption to lifestyle and identity, and medical trauma in children with CKD are needed.

Indexed as

adolescentschildrenchronic kidney diseasemental healthpatient-centered care

Identifiers

PMID40226374
PMCPMC11986815

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.