Evidence map›Paper›PMID 40223763›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

The Intersection of Gender, Culture and Society for Caregivers of Older Adults Ageing in Place in Ontario, Canada.

Danielle Jacobson, Tashani Parker, Lauren Cadel, Elizabeth Mansfield, Kerry Kuluski

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Observational
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Danielle JacobsonInstitute for Better Health, Trillium Health Partners, Mississauga, Canada.
Tashani ParkerInstitute for Better Health, Trillium Health Partners, Mississauga, Canada.
Lauren CadelInstitute for Better Health, Trillium Health Partners, Mississauga, Canada.
Elizabeth MansfieldInstitute for Better Health, Trillium Health Partners, Mississauga, Canada.
Kerry KuluskiInstitute for Better Health, Trillium Health Partners, Mississauga, Canada.ORCID 0000-0002-6377-6653

Funding

K.K. holds the Dr. Mathias Gysler Research Chair in Patient and Family Centred Care at Trillium Health Partners' Institute for Better Health. This study was funded by the Canadian Institutes for Health Research (181000).
6 · The paper itself

Abstract

backgroundIt is reported that women are more likely to be caregivers than men, experience a higher burden of care and increased emotional health sequelae as a result. Social location (a person's gender, culture, ethnicity, etc.) is known to influence caregiving experiences. However, there is limited work that draws attention to how cultural and linguistic diversity shapes the experiences and expectations of informal caregivers.

objectiveThe authors aimed to study how to reallocate health and social service resources to better support older adults ageing in place. However, some participants felt strongly about the role of gender. This report addresses the gap for better understanding (1) how gender influences informal caregiving for older adults ageing at home in Ontario, Canada, and (2) how culture may influence gendered caregiving expectations for this population.

designA critical social justice paradigm and balance of care framework guided the research. Focus groups (15) and one-one-one interviews (7) were carried out. A collaborative approach to codebook thematic analysis was conducted. SETTING AND

participantsThis study was carried out in Peel, a diverse region in Ontario, Canada. 42 individuals participated in the study (14 older adults, 10 caregivers and 18 healthcare providers).

findingsFour themes were found regarding the role of gender in caregiving: (1) women caregivers as catalysts for ageing in place, (2) gender norms, generational standards and the societal expectation for women to be caregivers, (3) the intersection of culture and gender on caregiving for older adults and (4) health service workforce as women-dominant and linguistically diverse. DISCUSSION AND

conclusionService needs not currently met by Canada's healthcare system often become absorbed by women caregivers who facilitate ageing in place. Further research is required to better understand: (1) how a larger breadth of communities experience the intersection of gender and culture in the care of older adults in Ontario, Canada, and (2) how to better harness the diversity within Canada's homecare workforce to allow for cultural, linguistic and/or gender alignment with older adult clients. PATIENT OR PUBLIC CONTRIBUTION: Patients and caregivers were research participants; however, the focus groups were co-design sessions, in which participants built and shaped personas and care packages.

Indexed as

CaregiversCultureIndependent LivingAgedAged, 80 and overFemaleFocus GroupsHumansInterviews as TopicMaleMiddle AgedOntarioQualitative ResearchSex Factorsageing at homeageing in placecaregivinggender normsolder adultssexism

Identifiers

PMID40223763
PMCPMC11995178

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.