Evidence map›Paper›PMID 40221694›Full record

ArticleBMC public health2025

Mind the gap: examining policy and social media discourse on Long COVID in children and young people in the UK.

Macarena Chepo, Sam Martin, Noémie Déom, Ahmad Firas Khalid, Cecilia Vindrola-Padros

Abstract read
In one paragraph

Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Macarena ChepoSchool of Nursing, Universidad Andrés Bello, Santiago, Chile.ORCID https://orcid.org/0000-0001-6277-7710
Sam MartinDepartment of Targeted Intervention, University College London (UCL), Charles Bell House 43 - 45 Foley Street, London, W1W 7TY, UK.ORCID https://orcid.org/0000-0002-4466-8374
Noémie DéomDepartment of Targeted Intervention, University College London (UCL), Charles Bell House 43 - 45 Foley Street, London, W1W 7TY, UK. n.deom@ucl.ac.uk.ORCID https://orcid.org/0000-0001-9348-8970
Ahmad Firas KhalidCentre for Implementation Research, Canadian Institutes of Health Research Health System Impact Fellowship, Ottawa Hospital Research Institute, Ottawa, ON, Canada.ORCID https://orcid.org/0000-0002-8525-2455
Cecilia Vindrola-PadrosDepartment of Targeted Intervention, University College London (UCL), Charles Bell House 43 - 45 Foley Street, London, W1W 7TY, UK.ORCID https://orcid.org/0000-0001-7859-1646

Funding

MRC-UKRI Better Methods, Better Research MR/W029766/1
6 · The paper itself

Abstract

backgroundLong COVID in children and young people (CYP) has posed significant challenges for health systems worldwide. Despite its impact on well-being and development, policies addressing the needs of CYP remain underdeveloped. This study examines UK Long COVID policies using ethical frameworks, integrating policy and social media analyses to explore public and professional concerns.

methodsA mixed-methods approach was applied. Policy documents were reviewed using Thompson et al.'s pandemic preparedness framework and Campbell and Carnevale's child-inclusive ethical model. Social media discourse (12,650 posts) was analysed using Brandwatch™ to identify key themes around CYP and Long COVID policies. Data was collected and triangulated through the LISTEN method, which integrates policy analysis with social media discourse to ensure a holistic understanding of systemic gaps and public perceptions.

resultsAnalysis highlighted gaps in accountability, inclusiveness, and transparency in policy development. Social media data reflected significant public dissatisfaction, primarily critiquing government accountability (90% of posts) and delayed policy responsiveness (29% of posts). Key ethical challenges included limited CYP representation and unequal access to services.

conclusionsRecommendations include improving transparency, incorporating CYP perspectives in policymaking, and ensuring equitable access to care. These findings provide a foundation for ethically sound and inclusive policies addressing Long COVID in CYP.

Indexed as

COVID-19Health PolicyPolicy MakingSocial MediaAdolescentChildHumansUnited KingdomChildren and young people (CYP)COVID- 19Long COVIDSocial media discourse analysisUK health policy

Identifiers

PMID40221694
PMCPMC11992780

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.