Evidence map›Paper›PMID 40219770›Full record

Trial reportPalliative medicine2025

The family caregiver-targeted web-based intervention "narstaende.se" facilitated everyday life for couples facing life-threatening illness: A qualitative study.

Cecilia Bauman, Viktoria Wallin, Sandra Doveson, Per Fürst, Peter Hudson, Ulrika Kreicbergs, Anette Alvariza

Registry-linked trialAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Palliative medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05785494 (Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05785494 naactive not recruitingnot on this map

Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer

TypeinterventionalSponsorErsta Sköndal University CollegeRan2022 to 2026Enrolled204ConditionsFamily, End of Life, Cancer Metastatic, Chronic IllnessArmsNarstaende.se
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Cecilia BaumanDepartment of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden.ORCID 0000-0003-4315-7676
Viktoria WallinDepartment of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden.ORCID 0000-0001-6019-4335
Sandra DovesonDepartment of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden.ORCID 0000-0002-8780-5922
Per FürstDepartment of Neurobiology, Care Sciences and Society (NVS), Karolinska Institute, Stockholm, Sweden.ORCID 0000-0001-5363-833X
Peter HudsonCentre for Palliative Care St Vincents & The University of Melbourne, Melbourne, VIC, Australia.ORCID 0000-0001-5891-8197
Ulrika KreicbergsDepartment of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden.
Anette AlvarizaDepartment of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden.ORCID 0000-0003-2711-0245

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLife-threatening illness affects both patients and spouses, and spousal caregivers report high levels of distress. Web-based interventions could benefit spouses' and patients' needs and shared everyday life.

aimTo explore how a family caregiver-targeted web-based psychoeducational intervention influences couples' experiences of sharing everyday life at home while facing life-threatening illness.

designThis qualitative sub-study involved dyadic interviews with couples (spouse-patient) where the spouse was allocated to the intervention arm of a randomized controlled trial evaluating a web-based family caregiver-targeted intervention. Data were analyzed using Interpretive description. SETTING/

participantsParticipants were recruited from five specialized home care services in Sweden. In total, 32 participants, spouses (n = 16) and patients (n = 16) were interviewed as couples after the spouse had accessed the intervention for 4 weeks.

resultsCouples described how the spouses' access to the intervention had provided knowledge that enhanced the couple's understanding of each other's strategies for managing the impacts of the illness. The topics covered in the intervention prompted the spouses to initiate conversations that helped couples maintain a sense of mutuality. The intervention provided support to balance the tension between previous and new relational roles, which had changed due to the patient's illness.

conclusionsAltogether, the results show that the benefits of family caregiver-targeted interventions may extend from spouse to patient, facilitating their everyday life. Our findings complement previous intervention evaluations by providing insights into how they may be effective. The goal should be that interventions potentially benefit patients and family caregivers. TRIAL REGISTRY: The randomized controlled trial is registered at ClinicalTrials.gov, ID NCT05785494.

Indexed as

CaregiversInternet-Based InterventionSpousesAdaptation, PsychologicalAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedQualitative ResearchSwedenfamily caregivershome careinternet-based interventioninterventionPalliative carepsychoeducationalweb-based

Identifiers

PMID40219770
PMCPMC12033377

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.