Evidence map›Paper›PMID 40214161›Full record

ArticleJournal of the American Geriatrics Society2025

What Changed Your Mind? Influencers of Older Adults Changing Decisions About Aging-In-Place Versus Long-Term Care.

Isabel Cohen, Raven Relerford, Charles Olvera, Vanessa Ramirez-Zohfeld, Amber Miller-Winder, Lee A Lindquist

Abstract read
In one paragraph

Article in Journal of the American Geriatrics Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Phenotypes of Older Adults Planning for Alzheimer's Disease Support.Journal of the American Geriatrics Society · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Isabel CohenDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.
Raven RelerfordDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.
Charles OlveraDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.
Vanessa Ramirez-ZohfeldDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.
Amber Miller-WinderDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.
Lee A LindquistDivision of Geriatrics, Northwestern University, Feinberg School of Medicine, Chicago, Illinois, USA.ORCID 0000-0002-4290-5081

Funding

The Claude D. Pepper Older Americans Independence Center (OAIC) at Northwestern UniversityP30AG059988 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI ACKERMANN, RONALD T. · 2020 to 2024
$7.1M
Negotiation Training to Optimize Caregiver Communication in Alzheimer's DiseaseR01AG068421 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI LINDQUIST, LEE A · 2020 to 2024
$3.8M
Decision Making and Implementation of Aging-in-Place/Long Term Care Plans among Older AdultsR01AG058777 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI LINDQUIST, LEE A · 2019 to 2023
$3.7M
Measuring Caregiver Networks of Older Adults with Alzheimer's DiseaseR01AG083034 · NIA · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Michelle Birkett, Lee A Lindquist · 2023 to 2026
$3.0M
NIA NIH HHS P30 AG059988NIA NIH HHS P30AG059988NIA NIH HHS R01 AG058777NIA NIH HHS R01AG058777NIA NIH HHS R01 AG068421NIA NIH HHS R01AG068421NIA NIH HHS R01 AG083034NIA NIH HHS R01AG083034
6 · The paper itself

Abstract

backgroundAs individuals experience age-related changes, such as cognitive decline or hospitalizations, their ability to live independently at home may be impacted. Decision-making and planning are essential in order to support successful aging-in-place (AIP), which is defined as continuing to live in one's home and community. Despite making plans at one single time-point, prior research has demonstrated that decision-making among older adults is not stagnant.

aimsThe objective of this qualitative study was to understand what influences older adults to change their plans about AIP versus living in long-term care (LTC) settings.

methodsWe analyzed a subset of the PlanYourLifespan study subjects (a longitudinal cohort study of community dwelling older adults) who have shown a fluctuation in their AIP/LTC decisions over a 6-month period and surveyed what influenced their decisions to change. Decisions related to support needed in the case of a hospitalization and Alzheimer's disease/memory loss (rehabilitation preferences, caregiver support, living preferences, and LTC facilities) were assessed. Three investigators individually coded open-ended survey responses to identify emerging themes using constant comparative analysis with triangulation of themes.

resultsOf the 293 PYL study subjects, 134 expressed a change to at least one of their decisions. Through a qualitative analysis of survey responses, five overarching themes emerged that influenced fluctuating decision-making: (1) personal health experience, (2) health experience of a loved one, (3) increased contemplation, (4) social support network influences, and (5) denying change. DISCUSSION: This study was the first to examine the factors that influence fluctuating AIP/LTC decision-making among older adults. The key influencers identified highlight the importance of ongoing discussions to revisit AIP/LTC planning in the case of changing or unexpected life events. Having a strong understanding of what influences seniors in their AIP/LTC decision-making processes will enable us to include these factors and people in decision-making discussions.

Indexed as

AgingDecision MakingIndependent LivingLong-Term CareAgedAged, 80 and overFemaleHospitalizationHumansLongitudinal StudiesMaleQualitative Researchaging‐in‐placeAlzheimer's diseasedecision‐makinglong‐term care planning

Identifiers

PMID40214161
PMCPMC12353053

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.