ArticleJournal of the American Medical Informatics Association : JAMIA2025
Assessing health literacy and diversity within the All of Us Research Program.
Article in Journal of the American Medical Informatics Association : JAMIA, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Returning value to communities from the All of Us Research Program through innovative approaches for data use, analysis, dissemination, and research capacity building.Journal of the American Medical Informatics Association : JAMIA · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
objectiveThe objective was to understand the association between people with adequate and inadequate health literacy (HL) in the All of Us cohort. MATERIALS AND
methodsOverall, health survey responses to 3 questions from 246 555 people, ages 18-77 years in the controlled tier V7 dataset, were used to assess and compare HL. HL scores ranged from 3 to 15, with scores ≤9 indicating inadequate HL and >9 indicating adequate HL.
resultsCohort participants' responses indicate 92.4% met criteria for adequate HL. Persons with inadequate HL versus adequate HL were likely to be Gen X, male, Black, report an income less than $25k, and have less than a high school education. Furthermore, the rate of HL may not represent that for the broader US population. DISCUSSION: All of Us participants had much higher rates of HL than that for the 2003 National Assessment of Adult Literacy, suggesting approximately over 90% of the US population has HL challenges. The All of Us cohort's high rates of HL may reflect response and recruitment bias. Given the emphasis on diversity and inclusion within the cohort, and understanding HL as the ability to find, understand, and use health information, revisiting the recruitment strategies and, potentially, the assessment of HL within the All of Us cohort is recommended.
conclusionFactoring HL into diversity and inclusion research recruitment efforts will require review and testing of innovative approaches to community recruitment, engagement, and retention methods. Infusing HL into precision medicine can advance opportunities for individual improvement in health promotion and disease management. Future population level efforts in precision medicine should consider more sensitive measures to critical social determinants of health, such as health literacy, to more carefully characterize diversity and inclusion in these studies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.