ArticleThe journal of pain2025
Community leaders' perceptions of pain and research engagement: Implications for participant diversity and inclusion in pain clinical trials.
Article in The journal of pain, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Clinical trials lack diversity and representation of minoritized groups, reducing generalizability and potentially the effectiveness of interventions across these populations. The purpose of this study was to identify how community perceptions of pain and pain research shape participation in pain-related clinical trials among underrepresented groups from the perspective of community organization leaders. We conducted a qualitative study with in-depth, semi-structured interviews with representatives from community-based organizations (N=20). Interviews represented experiences of leaders serving minoritized populations, including Black/African American, Hispanic/Latino, and Asian communities in the Greater Seattle Area. Data were analyzed in Dedoose using thematic analysis. We identified five main themes: (1) Community perceptions of and communication around pain, (2) Pain research is an extension of Western medicine, (3) Community leaders' experiences with researchers, (4) Returning the results to the community increases research meaning, (5) Understand the community experience with social determinants of health. Participants believed that their communities were largely uninterested in pain clinical trials because they perceived a misalignment between trial treatment options and their communities' preferences and needs. Future research investigating integrative approaches to pain care, engaging the community in research design, and considering ways to address social determinants of health may help overcome this misalignment and improve the relevance of pain research to diverse communities. PERSPECTIVE: This article presents perspectives on pain and participation in pain research among community organization leaders serving minoritized communities in the Greater Seattle Area. The expertise of community organization leaders may inform efforts to design pain research that best engages minoritized and underrepresented groups to improve equitable pain medicine and research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.